Hi All
Yup it’s me again!!
Had a Gastro appt last week – all seems ok, keep getting a pain in my right side may have a bit of narrowing going on at a join in my intestine so gonna keep an eye on that, apart from that all seems ok.
Had a check up at Haematology Tuesday – everyone seemed very happy – bloods looked good, put on some weight about 9 stone now – yup I’m a fat baldy lol but hey Rachael (the dietician) is happy and trust me it’s hard to make Rachael smile lol,
So now just a waiting game really – waiting to get better ………… waiting to get sick lol
But I do kinda find myself in an odd situation – or different situation – physically and psychologically!
With the Crohns as unpredictable as it is, I kinda got to know the sign and symptoms having had it for so long so in some ways always knew where I stood or what to look out for.
With this transplant and being formatted (immune system wiped) so to speak and having to be so so so careful of germs and virus’ it is kinda strange ……………….. Sometimes find myself sitting round waiting to get sick!! As gotta be careful for months, so its all very strange and so far I have been quite well (well not a bad a predicted) – really tired but not too bad.
Ooh and the tiredness is different! Yeah weird I know! Used to feeling fatigued with the Crohns, body used to give in first followed by the head but this is the other way round my head/brain gives up first its like I hit a mental wall – then the body follows (I think it has no choice as brain too knackered to make it move lol)
Well thats about it - dont go back to hospital til the 7th and 8th Dec unless summat goes wrong!!
Bye for now P xxxxxxxxxxxxxxx
Thursday, 26 November 2009
Thursday, 12 November 2009
Brave Little Soldier ...... Not!
Hi All
Had clinic appt Tues which went well n don't wanna see me for 2 weeks which is great - just a bit concerned cos white cell count was quite high - but had to go back to day unit again today and it has gone down so that's good :-)
Had my Hickman line removed today - ouchhhhhhhh!! well actually I was really brave when they put the local anesthetic in - Gemma the nurse on the other hand was a complete wimp and I had to hold her hand - PMSL, that was the worse bit the rest was just pressure - Im sure it will hurt a bit later when the bruising comes out as it was well n grown truly in there!! - But Gemma n Katherine were great :-)
That's kinda it really - all going well so far :-) :-) :-) still trying to stay germ free!
P xxxxxxxxxxxxxxx
Had clinic appt Tues which went well n don't wanna see me for 2 weeks which is great - just a bit concerned cos white cell count was quite high - but had to go back to day unit again today and it has gone down so that's good :-)
Had my Hickman line removed today - ouchhhhhhhh!! well actually I was really brave when they put the local anesthetic in - Gemma the nurse on the other hand was a complete wimp and I had to hold her hand - PMSL, that was the worse bit the rest was just pressure - Im sure it will hurt a bit later when the bruising comes out as it was well n grown truly in there!! - But Gemma n Katherine were great :-)
That's kinda it really - all going well so far :-) :-) :-) still trying to stay germ free!
P xxxxxxxxxxxxxxx
Monday, 9 November 2009
Happy to be home :-)
Hi all
Been home nearly a week now - cant believe it!! feeling ok if very very tired - 2nd lot of chemo kickin in now :-( and trying to stay germ free!!!!!!!!!!!!!!!!!!
Had bloods done last week all seemed ok - back for clinic appt n bloods again 2moro so will see wot they say!!
P xxxxxxxxxxxxxxxx
Been home nearly a week now - cant believe it!! feeling ok if very very tired - 2nd lot of chemo kickin in now :-( and trying to stay germ free!!!!!!!!!!!!!!!!!!
Had bloods done last week all seemed ok - back for clinic appt n bloods again 2moro so will see wot they say!!
P xxxxxxxxxxxxxxxx
Tuesday, 3 November 2009
I'm Coming home I've done my time!!
Got the news - count went up to 3.6 overnight!!!!!!!!!!!!!!! so that's me outta here this afternoon.
Still gotta be squeaky clean careful but yeahhhhhhhhhhhhh home!! - really surprised it has happened all so quickly and almost incident free so far.
Baldy P gets her 'freedom' pass lol
lotsa love to all .................... from almost on the outside lol xxxxxxxxxxxxxxx
Still gotta be squeaky clean careful but yeahhhhhhhhhhhhh home!! - really surprised it has happened all so quickly and almost incident free so far.
Baldy P gets her 'freedom' pass lol
lotsa love to all .................... from almost on the outside lol xxxxxxxxxxxxxxx
Monday, 2 November 2009
The only way is up .................... Baby!!
Docs not long been round - My little 0.1 count of yesterday has increased to a whopping 0.4!! and the news on the street is .......................... If tomorrow my count is 0.5 or over I not only get to leave my little prison cell I get to go home .........................2moro!!!!!!!!!!!!!!!!!
How about that for some good Monday morning news - was almost too excited to enjoy my massage lol
Still gotta take it easy for a good few weeks/months gonna have to be careful as open to infections n stuff - so still have to go to the hospital for clinic appts and the day unit - to keep a check on me and my bloods.
So anyway GROW you little f******s GROW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Love to ya all
P xxxxxxxxxxxxxxxxxxxx
How about that for some good Monday morning news - was almost too excited to enjoy my massage lol
Still gotta take it easy for a good few weeks/months gonna have to be careful as open to infections n stuff - so still have to go to the hospital for clinic appts and the day unit - to keep a check on me and my bloods.
So anyway GROW you little f******s GROW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Love to ya all
P xxxxxxxxxxxxxxxxxxxx
Sunday, 1 November 2009
I want to break free!!
lol that could be a song you know.
Ok 8 days in the room now getting a bit bored (not forgetting the clocks went back last weekend so that did add another hour - officially!!)
It's the just just not knowing when I will be allowed out - don't get me wrong I don't be going off out to the cinema or shopping or anything - but just a teeny weeny bit of fresh air would be lovelyyyyyyyyyyyyyyyyyyyyyyy
Just saw one of the doctors - maybe in a few days i.e. when count goes up to 0.5 I can leave the room i.e. walk on the ward!.
Well that kinda all i can say really as not alot happening at all,
Luv Ya all
Thanks for the comments/messages :-) xxxxxxxxxxxxxxxxx
Ok 8 days in the room now getting a bit bored (not forgetting the clocks went back last weekend so that did add another hour - officially!!)
It's the just just not knowing when I will be allowed out - don't get me wrong I don't be going off out to the cinema or shopping or anything - but just a teeny weeny bit of fresh air would be lovelyyyyyyyyyyyyyyyyyyyyyyy
Just saw one of the doctors - maybe in a few days i.e. when count goes up to 0.5 I can leave the room i.e. walk on the ward!.
Well that kinda all i can say really as not alot happening at all,
Luv Ya all
Thanks for the comments/messages :-) xxxxxxxxxxxxxxxxx
Friday, 30 October 2009
Who is a clever girl then .....................
Yep that would be me!!
Managed to get my neutrophiles up to a whopping 0.1 lololol all by myself without the GCSF! SO THERE!!
Thats cool - Im impressed, also had a visit from Vinnie (Dentist) he stuck my tooth/goldcap back on so that was cool too.
Oh but some other count or other has dropped :-( so gotta have a couple of bags of bag of blood! - Thankyou to all the wonderful blood donors out there :-)
P xxxxxxxxxxxxx Counting, counting, counting lol
(this message should have been posted yesterday but was a small Internet problem)
Managed to get my neutrophiles up to a whopping 0.1 lololol all by myself without the GCSF! SO THERE!!
Thats cool - Im impressed, also had a visit from Vinnie (Dentist) he stuck my tooth/goldcap back on so that was cool too.
Oh but some other count or other has dropped :-( so gotta have a couple of bags of bag of blood! - Thankyou to all the wonderful blood donors out there :-)
P xxxxxxxxxxxxx Counting, counting, counting lol
(this message should have been posted yesterday but was a small Internet problem)
Thursday, 29 October 2009
Hiya all,
Thanks for you messages :-)
no - not really anymore interesting facts about my room - except I am sure it is getting smaller!!
Oh and would you bloody believe it - a gold cap came loose today nearly swallowed it - well gonna try n get a dentist with a little cement to pop down n stick it back in lol.
Blood count still oh whole fat ZERO! - probably will be til Saturday when I start to have some more GCSF (injections like before to stimulate my stem cells for my harvesting, grown hormone factor stuff) - well not alot to tell ya cos I cant escape - but if I run to the door when they take the bins out I can see outside lol - yeah I know I gotta window ................ but its a 'different' bit of outside!!
luv to all
P xxxxxx
Thanks for you messages :-)
no - not really anymore interesting facts about my room - except I am sure it is getting smaller!!
Oh and would you bloody believe it - a gold cap came loose today nearly swallowed it - well gonna try n get a dentist with a little cement to pop down n stick it back in lol.
Blood count still oh whole fat ZERO! - probably will be til Saturday when I start to have some more GCSF (injections like before to stimulate my stem cells for my harvesting, grown hormone factor stuff) - well not alot to tell ya cos I cant escape - but if I run to the door when they take the bins out I can see outside lol - yeah I know I gotta window ................ but its a 'different' bit of outside!!
luv to all
P xxxxxx
Tuesday, 27 October 2009
Feel like a prisoner with haircut to match lol
Hi All
Still locked in my little room - count hit zero, yesterday and today (but that's the idea) so cant go anywhere - getting a little cabin feverish but ho-hum and very tired - keep doing the whole nodding dog thing - will break my neck a this rate lol.
Had half hour reflexology yesterday which was very pleasant :-)
Well not alot else I can tell you except that .............................................................................................. my room is 17 1/3 piggy steps by 14 1/2 piggy steps!!
LOLOLOL
Pxxxxxxxxxxxxxxx
Still locked in my little room - count hit zero, yesterday and today (but that's the idea) so cant go anywhere - getting a little cabin feverish but ho-hum and very tired - keep doing the whole nodding dog thing - will break my neck a this rate lol.
Had half hour reflexology yesterday which was very pleasant :-)
Well not alot else I can tell you except that .............................................................................................. my room is 17 1/3 piggy steps by 14 1/2 piggy steps!!
LOLOLOL
Pxxxxxxxxxxxxxxx
Sunday, 25 October 2009
The Chemo is doing it's job .....................
Well the chemo is doing it's job - (sorry Jill, have to put in the nasty bits too) bloods are dropping as off yesterday morning I am officially Neutropenic - very low blood counts - i.e. the chemo is working - killing off all the old cells - then the stem cells will eventually grow, grow, grow replace the old immune system, yeah thats about it really lol.
So I am locked in my room - I am allowed visitors - HEALTHY ONES ONLY!! - not feeling too bad yesterday/today so far - but gotta hit the bottom before you can climb the ladder back up again.
It is kinda odd not being allowed out feel like a prisoner lol.
luv to all
P xxxxxxxxxxxx
So I am locked in my room - I am allowed visitors - HEALTHY ONES ONLY!! - not feeling too bad yesterday/today so far - but gotta hit the bottom before you can climb the ladder back up again.
It is kinda odd not being allowed out feel like a prisoner lol.
luv to all
P xxxxxxxxxxxx
Saturday, 24 October 2009
Week One – Short breakdown: HONEST IT IS ....... JUST LOOKS LOTS!!
Sorry peeps probably more for my benefit than yours
To help with the boredom – as feeling ok at the moment
Summat too look back on in the future
also if the entry is that boring it might help me sleep lol or you :-)
DAY 1 – SATURDAY 17TH OCTOBER 2009 - Chemo
DAY 2 – SUNDAY 18TH OCTOBER 2009 - Chemo
DAY 3 – MONDAY 19TH OCTOBER 2009 - ATG DAY – the rabbit stuff, no initial reaction, that followed.
More chemo – yeah I know repetitive aint it lol
Day 4 – TUESDAY 20TH OCTOBER 2009 - ATG – RABBIT DAY 2, had a slight reaction, temperature, feeling unwell for a good few hours but soon passed.
Carol popped up to see me briefly as poorly and Michael came to visiting in the evening so all in all turned into a good day.
DAY 5 WEDNESDAY 21ST OCTOBER 2009 - Met Lisa outside visiting hours downstairs had a wicked hour or so having coffee n McD’s for lunch (well it is in the same road so considered ‘on site’ well is in my eyes).
DAY 6 – THURSDAY 22ND OCOBER 2009 - Lots of lots of peeing thanx to the meds, as managed to gain almost a stone and a half due to fluid retention (fat cow)!
DAY 7 – FRIDAY 23RD OCTOBER 2009 (NOW DAY ZERO – LOL)
STEM CELL REPLACEMENT DAY – MY NEW BIRTHDAY
All went well and continues to do so.
I did manage to get a couple of hours (literally 2!) free in the morning so I was really bad!
I jumped in a cab outside popped home n had a HUGEEEEEEEEE squeeze of my boys – quick coffee with Carol n Shelia and popped to Tesco and came back to the hospital for my Stem cell replacement (given via IV drip)in the afternoon.
I think I could have got away with it but I could not resist the urge to purchase some Krispy Kreme donuts for the ward and the day unit – I think that was when they began to enquire as to where have you been?? lol – but hey – I think I got away with it lol.
So now we just sit back and wait – feeling ok but any day from today to next weekend all my blood counts will start to drop I shall be very unwell and get neutropenic (i.e. no immune system and in isolation and very open to infection anf just generally feeling like sh**e!)
Then it is just a case of getting over that waiting for the bloods to slowly rise and start to climb the ladder back up.
Its not gonna be easy I doubt but hey I am in wonderful hands I have you all out there routing for me – and HEY I GOT 2 BIRTHDAYS Now! …………… NUFF SAID LOL
Lovin ya all
P xxxxxxxxxx
Sorry peeps probably more for my benefit than yours
To help with the boredom – as feeling ok at the moment
Summat too look back on in the future
also if the entry is that boring it might help me sleep lol or you :-)
DAY 1 – SATURDAY 17TH OCTOBER 2009 - Chemo
DAY 2 – SUNDAY 18TH OCTOBER 2009 - Chemo
DAY 3 – MONDAY 19TH OCTOBER 2009 - ATG DAY – the rabbit stuff, no initial reaction, that followed.
More chemo – yeah I know repetitive aint it lol
Day 4 – TUESDAY 20TH OCTOBER 2009 - ATG – RABBIT DAY 2, had a slight reaction, temperature, feeling unwell for a good few hours but soon passed.
Carol popped up to see me briefly as poorly and Michael came to visiting in the evening so all in all turned into a good day.
DAY 5 WEDNESDAY 21ST OCTOBER 2009 - Met Lisa outside visiting hours downstairs had a wicked hour or so having coffee n McD’s for lunch (well it is in the same road so considered ‘on site’ well is in my eyes).
DAY 6 – THURSDAY 22ND OCOBER 2009 - Lots of lots of peeing thanx to the meds, as managed to gain almost a stone and a half due to fluid retention (fat cow)!
DAY 7 – FRIDAY 23RD OCTOBER 2009 (NOW DAY ZERO – LOL)
STEM CELL REPLACEMENT DAY – MY NEW BIRTHDAY
All went well and continues to do so.
I did manage to get a couple of hours (literally 2!) free in the morning so I was really bad!
I jumped in a cab outside popped home n had a HUGEEEEEEEEE squeeze of my boys – quick coffee with Carol n Shelia and popped to Tesco and came back to the hospital for my Stem cell replacement (given via IV drip)in the afternoon.
I think I could have got away with it but I could not resist the urge to purchase some Krispy Kreme donuts for the ward and the day unit – I think that was when they began to enquire as to where have you been?? lol – but hey – I think I got away with it lol.
So now we just sit back and wait – feeling ok but any day from today to next weekend all my blood counts will start to drop I shall be very unwell and get neutropenic (i.e. no immune system and in isolation and very open to infection anf just generally feeling like sh**e!)
Then it is just a case of getting over that waiting for the bloods to slowly rise and start to climb the ladder back up.
Its not gonna be easy I doubt but hey I am in wonderful hands I have you all out there routing for me – and HEY I GOT 2 BIRTHDAYS Now! …………… NUFF SAID LOL
Lovin ya all
P xxxxxxxxxx
Friday, 23 October 2009
ALSO HAPPY BIRTHDAY TO ME!!!!!!
Well apprently I am allowed to have this as my my new real official 2nd birthday of the year - Rachael said (the lovely dietician) so if there is an issue over this regarding gifts and cards next year please feel free to take the matter up with her!! lol ;-)
Well yep I HAVE BEEN TRANSPLANTED - no Ill effects - well maybe the cuppa the student made - appart from that IT'S ALL GOOD!!!!!!!!!!!!!!
And here to share with you all are some photos - lol yeah I know, Im sad but hey!!
THE DELIVERY VEHICLE LOL!
NOW THATS WOT I CALL SMOKIN BABY - AS THE CELLS EMERGE!!!!!
COOL OR WOT!!
THIS IS WHERE THE CELLS ARE WARMED TO BODY TEMP - POSH MICROWAVE REALLY LOL
YEP THIS IS WOT ALL THE FUSS IS ABOUT - STEM CELLS MINE ALL MINE!!
Well thats was my day PMSL - did you do anything good/interesting/different lol ??????????
Lovin ya all
Pxxxxxxxxxxxxxxxxxx
Today is THE DAY!! - TRANSPLANT DAY :-)
Well its finally here transplant day - which in medical hospital terms now becomes DAY 0 (zero)and 2moro day 0+1 and so on.
So you will have to excuse me if I use those terms from now on but this hospital jargon is kinda catching.
Also gotta say a Hugeeeeeeeee HAPPY TO YOU DAY to big, big bro Steve - cant wait to get well n outta here and come and see you and Jane and Maddie - and we can have day fishing - will be cool :-), have a good day and enjoy your dinner out 2nite - love to all.
More congrats in order too - my favourite niece - Sarah Bsc Hons (Who graduated from Loughborough earlier this year in Criminology) has a Job!!!!!!!!!!!! - yeahhhhhhhh well done you Sarzzzzzzzzzzzzzzzzzzzzzzzzzzzz, she will be working 3 days a week in a school with able bodied and physically handicapped children (I am sure she will be a very helpful member of the class lol!!) and she is also doing a 2 day a week course at Bucks Uni - gaining a psycological accreditation to her degree - She surely gets her brains from ............. yep must be her mothers side lol - so a fab fab day all round. Oh and her dad - that would be Bruv No 4 - is so excited too - he has this really odd idea she is now gonna pay rent PMSL!!!!! - I hope I spelt all this correctly and got it right - please sarz feel free to chastise me!!
Well I did try n post this up a around 6 am and had a technical error - or sleep deprivation - so here goes again!!
Lovin ya all - more to follow!!!!!!
P xxxxxxxxx
So you will have to excuse me if I use those terms from now on but this hospital jargon is kinda catching.
Also gotta say a Hugeeeeeeeee HAPPY TO YOU DAY to big, big bro Steve - cant wait to get well n outta here and come and see you and Jane and Maddie - and we can have day fishing - will be cool :-), have a good day and enjoy your dinner out 2nite - love to all.
More congrats in order too - my favourite niece - Sarah Bsc Hons (Who graduated from Loughborough earlier this year in Criminology) has a Job!!!!!!!!!!!! - yeahhhhhhhh well done you Sarzzzzzzzzzzzzzzzzzzzzzzzzzzzz, she will be working 3 days a week in a school with able bodied and physically handicapped children (I am sure she will be a very helpful member of the class lol!!) and she is also doing a 2 day a week course at Bucks Uni - gaining a psycological accreditation to her degree - She surely gets her brains from ............. yep must be her mothers side lol - so a fab fab day all round. Oh and her dad - that would be Bruv No 4 - is so excited too - he has this really odd idea she is now gonna pay rent PMSL!!!!! - I hope I spelt all this correctly and got it right - please sarz feel free to chastise me!!
Well I did try n post this up a around 6 am and had a technical error - or sleep deprivation - so here goes again!!
Lovin ya all - more to follow!!!!!!
P xxxxxxxxx
Wednesday, 21 October 2009
Well wot can I say .............
Thank you all so much for your comments - especially you Jill n Bruv No2 - have just screamed with laughter think the nurse thought I was having another reaction to the ATG.
Yes had a bit of a reaction yesterday so didn't feel very well, surprisingly none of the symptoms Jill describe PMSL.
Feeling a much brighter little 'bunny' today ........ ummmmmm can ya get bald bunnies??
Had a bit of a shock this morning - saw a man outside my window ................ I'M ON THE 8TH FLOOR!!!! think he is ok and not a stalker - will let ya know lol
The staff here are fab - well they have to be for putting up with me!
And Carol for feeding and generally amusing the boys whilst I am in here and the other million and one things she does, sometime she does things in my house and it takes me weeks to notice lol - I would be absolutely lost without her - I hope Stuart or Julie - passes on or reads this message to her cos she is a *************star ************
Doctors just been round happy with me so thats good - still have a weight gain issue with all the fluids they are pumping into me but may not get a many fluids today and a more or that nice little injection to make me pee loadsssssssssssss!!!!! so that should drop a few kilo's (2.25 pounds to a Kilo ok :-) its all metric here lol.
Singing off for now Baldy Bunny P xxxxxxxxxxxxx
Yes had a bit of a reaction yesterday so didn't feel very well, surprisingly none of the symptoms Jill describe PMSL.
Feeling a much brighter little 'bunny' today ........ ummmmmm can ya get bald bunnies??
Had a bit of a shock this morning - saw a man outside my window ................ I'M ON THE 8TH FLOOR!!!! think he is ok and not a stalker - will let ya know lol
The staff here are fab - well they have to be for putting up with me!
And Carol for feeding and generally amusing the boys whilst I am in here and the other million and one things she does, sometime she does things in my house and it takes me weeks to notice lol - I would be absolutely lost without her - I hope Stuart or Julie - passes on or reads this message to her cos she is a *************star ************
Doctors just been round happy with me so thats good - still have a weight gain issue with all the fluids they are pumping into me but may not get a many fluids today and a more or that nice little injection to make me pee loadsssssssssssss!!!!! so that should drop a few kilo's (2.25 pounds to a Kilo ok :-) its all metric here lol.
Singing off for now Baldy Bunny P xxxxxxxxxxxxx
Monday, 19 October 2009
Ummmm Rabbit for dinner............ PMSL!!!
Hi all
No - not really having rabbit for dinner - The ATG (a type of chemo stuff I'm having later) comes in 2 forms one contains horse and one contains rabbit.
Oh by the way just to clarify I ain't gotta eat it, its a rabbit by-product and I get it via a drip into my line, just in case someone thought otherwise lol - I'm having rabbit, not mt choice just the one im being given, I think I ordered sausages for my actually dinner - so don't think I will get confused!
Im am feeling ok just the normal crohn's stuff - no ill affects as yet from the chemo - but they are on the way, maybe by the weekend? who knows lol but I will be the first and I shall share my joy with you all lololol
Will try n update later after my rabbit n sausages n if no ill affects from the ATG!!
luv to all
Baldy P (but still with eyebrows - but not for long!!) xxxxx
and a hugeeeeeeee GOOD LUCK to Andy for 2moro!! xxxxxxxxxxxxxxxxxxxx
No - not really having rabbit for dinner - The ATG (a type of chemo stuff I'm having later) comes in 2 forms one contains horse and one contains rabbit.
Oh by the way just to clarify I ain't gotta eat it, its a rabbit by-product and I get it via a drip into my line, just in case someone thought otherwise lol - I'm having rabbit, not mt choice just the one im being given, I think I ordered sausages for my actually dinner - so don't think I will get confused!
Im am feeling ok just the normal crohn's stuff - no ill affects as yet from the chemo - but they are on the way, maybe by the weekend? who knows lol but I will be the first and I shall share my joy with you all lololol
Will try n update later after my rabbit n sausages n if no ill affects from the ATG!!
luv to all
Baldy P (but still with eyebrows - but not for long!!) xxxxx
and a hugeeeeeeee GOOD LUCK to Andy for 2moro!! xxxxxxxxxxxxxxxxxxxx
Saturday, 17 October 2009
Chemo'd Again
Hi - yeahhhhhhhhhhhhhhhh finally made it in for my transplant :-)
Having Chemo - saturday and sunday
Summat called ATG - Mon, Tues, Wed
Get my little stem cells back on Thurs
Then just sit back n wait to get sick ............... get sick then get better :-)
Well thats the plan - will keep ya all updated
P xxxxxxxx
Having Chemo - saturday and sunday
Summat called ATG - Mon, Tues, Wed
Get my little stem cells back on Thurs
Then just sit back n wait to get sick ............... get sick then get better :-)
Well thats the plan - will keep ya all updated
P xxxxxxxx
Friday, 9 October 2009
New revised admission date (for the 4th time lol)
Well, bearing any disasters, natural, acts of god or deliberate my new admission date is the 17th of October! Yup just a week on Saturday!
So that's a mere 8 days to stay healthy (as I can) and keep everything crossed - oh yeah especially them ........ lol might be sterile now but don't wanna catch owt nasty ............. anyway boys don't wanna sleep with bald girls lolololol pmsl
Off to a 40th Party 2moro night - may have one or 2 scotch n cokes may need to stay away from the shots though!
Well that's about it I think .................. as I am merrily formatting my desktop - yep gonna take forever to install everything again but ho hum will keep me outta trouble ..... for a while and beats the shit outta ironing all day long lol
Lotsa luv to all
Bald n keeping ALL her bits crossed P xxxxxxxxxxxxx
So that's a mere 8 days to stay healthy (as I can) and keep everything crossed - oh yeah especially them ........ lol might be sterile now but don't wanna catch owt nasty ............. anyway boys don't wanna sleep with bald girls lolololol pmsl
Off to a 40th Party 2moro night - may have one or 2 scotch n cokes may need to stay away from the shots though!
Well that's about it I think .................. as I am merrily formatting my desktop - yep gonna take forever to install everything again but ho hum will keep me outta trouble ..... for a while and beats the shit outta ironing all day long lol
Lotsa luv to all
Bald n keeping ALL her bits crossed P xxxxxxxxxxxxx
Thursday, 1 October 2009
Waiting Waiting Waiting!
Well not alot to report - except I have a dry socket lol my tooth cavity, so got some stuff n hopefully eventually it will heal and I can be transplanted - also picked up a bit of a sniffle - so definately not going in this weekend - maybe the next one (10th.)
But I have not been idle with Bruv No 2's help decorated the little hallway at the weekend and it does look rather nice - considering it was all bargin basement paint n paper from b&q - wallpaper £5 each (reduced from about £15-£20) and 2.5 litres of Dulux satin Wood paint for a pound!! reduced from about £30!! wey hey - happy days! also picked up 5 litres of silk emulision for £2 so may do the lounge next ............................. next year that is lol
Well should anything exciting or dramatic happen I shall let ya know.
Baldy P xxxxxxxxxxxx
But I have not been idle with Bruv No 2's help decorated the little hallway at the weekend and it does look rather nice - considering it was all bargin basement paint n paper from b&q - wallpaper £5 each (reduced from about £15-£20) and 2.5 litres of Dulux satin Wood paint for a pound!! reduced from about £30!! wey hey - happy days! also picked up 5 litres of silk emulision for £2 so may do the lounge next ............................. next year that is lol
Well should anything exciting or dramatic happen I shall let ya know.
Baldy P xxxxxxxxxxxx
Friday, 25 September 2009
The transplant due from platform ........
Is delayed!!!!
Had my tooth out - but the infection is still there so my transplant has been delayed as they don't wanna run the risk of it flaring up whilst Im having chemo - fair enough it is an unnecessary risk so maybe next week or the week after.
I had my Hickman line fitted on Wednesday and must thank the lovely Claire for arranging sedation cos that would have bloody hurt without it!!!!!!!!!!!
Anyway feel a little like Frankenstein's monster with a tube in my neck and coming outtta my chest with 3 little cannula type things hanging off it lol - SO ATTRACTIVEEEEEEEEEEE!!
Only the bolt thru my neck is missing!
So I ran round like a looney for most of the week getting stuff sorted - and now I get a least another week to trash the house and start again lol.
Let ya know summat interesting when I do lol unless you got summat interesting to share with me?????????????
Baldy P xxxxxx :-)
Had my tooth out - but the infection is still there so my transplant has been delayed as they don't wanna run the risk of it flaring up whilst Im having chemo - fair enough it is an unnecessary risk so maybe next week or the week after.
I had my Hickman line fitted on Wednesday and must thank the lovely Claire for arranging sedation cos that would have bloody hurt without it!!!!!!!!!!!
Anyway feel a little like Frankenstein's monster with a tube in my neck and coming outtta my chest with 3 little cannula type things hanging off it lol - SO ATTRACTIVEEEEEEEEEEE!!
Only the bolt thru my neck is missing!
So I ran round like a looney for most of the week getting stuff sorted - and now I get a least another week to trash the house and start again lol.
Let ya know summat interesting when I do lol unless you got summat interesting to share with me?????????????
Baldy P xxxxxx :-)
Thursday, 17 September 2009
Dental Issue ............ Grrrrrrr
My bloody abscess came back over the weekend and my dentist is not keen to touch it due to chemo - its never easy is it!
Got more anti-biotics - spent 4 hours at the hospital emergency dentist yesterday - oh wot joy! and gotta go back today to have the tooth removed this morning and more IV anti-biotics.
Also have an appt with Claire (transplant nurse) gotta drop off a 24 urine sample - wow I get to do some great stuff!! and Rachael (dietician) this afternoon - ummmmmm hair loss and tooth removal well that wont do the weight issue any good will it, better wear some heavy clothes lol.
I have had one or two strange looks wandering round with my bandanna's on - people who know me but not too well don't know about the treatment I have opted to go through have looked and kinda smiled oddly - almost sympathetically, haven't noticed anyone purposely avoiding me yet - thinking the worse and that I have cancer, its kinda a strange situation but I am sure it will happen, I suppose its an obvious assumption but still kinda strange.
My friends on the other hand have been great - shouts of 'Oi Tuffy' and 'oooh that reminds me I haven't had a boiled egg for ages' and various other things - they are all digging out their kids fuzzy felts to make me some eyebrows for when they fall out lol oh and just to clarify so far the ONLY place my hair has not started to fall out is my ............................... ARMS!
I know you are all dying to ask lol - but hey got another week of some serious chemo to come so suppose it will all go then.
Love to all
A still chilly Baldy P xxxx
Got more anti-biotics - spent 4 hours at the hospital emergency dentist yesterday - oh wot joy! and gotta go back today to have the tooth removed this morning and more IV anti-biotics.
Also have an appt with Claire (transplant nurse) gotta drop off a 24 urine sample - wow I get to do some great stuff!! and Rachael (dietician) this afternoon - ummmmmm hair loss and tooth removal well that wont do the weight issue any good will it, better wear some heavy clothes lol.
I have had one or two strange looks wandering round with my bandanna's on - people who know me but not too well don't know about the treatment I have opted to go through have looked and kinda smiled oddly - almost sympathetically, haven't noticed anyone purposely avoiding me yet - thinking the worse and that I have cancer, its kinda a strange situation but I am sure it will happen, I suppose its an obvious assumption but still kinda strange.
My friends on the other hand have been great - shouts of 'Oi Tuffy' and 'oooh that reminds me I haven't had a boiled egg for ages' and various other things - they are all digging out their kids fuzzy felts to make me some eyebrows for when they fall out lol oh and just to clarify so far the ONLY place my hair has not started to fall out is my ............................... ARMS!
I know you are all dying to ask lol - but hey got another week of some serious chemo to come so suppose it will all go then.
Love to all
A still chilly Baldy P xxxx
Tuesday, 15 September 2009
Shiny, Shiny, Shiny!!!
Had hospital appt yesterday - just a Gastro chat n bloods, nothing major, then I went and did it .......................................
Couldn't stand all the hair falling out n looking patchy (started to look like a right victim lol) so went and got it ALL SHAVED OFF!! clippered off then razored - SHINY SHINY SHINY!!
and now a little chilly round the ol noggin lol
C-fer just kinda looked at me, shrugged and went back to sleep - Bubble stared and stared then ran away lol bless - I frightened him, he is starting to come round now but still just keep looking at me going WTF!!!!!!!!!!!!!!!!!!!
A chilly Baldy P xxxxxxxxxxxxxx
Ohhhhhhhhhhh and today is a medical DAY OFF - YEAHHHHHHHHHHHH!!!!!!!!!!!!!!!
Couldn't stand all the hair falling out n looking patchy (started to look like a right victim lol) so went and got it ALL SHAVED OFF!! clippered off then razored - SHINY SHINY SHINY!!
and now a little chilly round the ol noggin lol
C-fer just kinda looked at me, shrugged and went back to sleep - Bubble stared and stared then ran away lol bless - I frightened him, he is starting to come round now but still just keep looking at me going WTF!!!!!!!!!!!!!!!!!!!
A chilly Baldy P xxxxxxxxxxxxxx
Ohhhhhhhhhhh and today is a medical DAY OFF - YEAHHHHHHHHHHHH!!!!!!!!!!!!!!!
Sunday, 13 September 2009
HOME SWEET HOME!
Finally got home early evening on Saturday - and how lovely it is to be here :-)
Still a little weak n wobbly - tummy still very upset cos of anti-biotics and and hair is coming out in lumps so ...... got hospital appt in the morning (just for a change lol) then gonna get my head shaved otherwise me, c-fer and bubble will all be choking on fur balls!
Transplant now scheduled to start on 26th Septmeber - will let ya know if it changes - yup thats less than 2 weeks!!!!!!!!!!!!!
Love n hugs to all
BALDY P xxxxxxxxxxxxxxxxx
Still a little weak n wobbly - tummy still very upset cos of anti-biotics and and hair is coming out in lumps so ...... got hospital appt in the morning (just for a change lol) then gonna get my head shaved otherwise me, c-fer and bubble will all be choking on fur balls!
Transplant now scheduled to start on 26th Septmeber - will let ya know if it changes - yup thats less than 2 weeks!!!!!!!!!!!!!
Love n hugs to all
BALDY P xxxxxxxxxxxxxxxxx
Friday, 11 September 2009
Bored, Bored, Bored, Bored
Yup! you guessed it I'm feeling loads better and now just wanna go home and see my boys
C-Fer (black & white one) n Bubble (tabby & white one)
The reason I cant go home is because the IV anti-biotics have seriously given my an upset tummy and my sodium, potassium and summat else levels have really really dropped so gotta have them IV or tablet form to boost the levels grrrrrrrrrrrrrrrrrrrrr - see they give ya one thing for summat and it messes up something else!!
OOhh hair will all be gone in a few weeks at this rate!! wow serious fallout!!
Dunno if anyone has noticed but at the bottom the page is a counter so every time you visit me here it clocks up another hit - hasn't been running from the very beginning but for a few weeks BUT ................. something happened yesterday and in the space of about 8 hours I managed to get over 11 thousand hits - so who is gonna confess to having a serious f5 key issue yesterday cos I aint never been that popular in my life, lol unless its the NHS Police or summat lololol.
Explanations or confessions welcome in the comments!! :-)
Off for wander n some "fresh air" now then maybe try n sleep!!
Nite nite all P xxxxxxxxxxxx
Thursday, 10 September 2009
Todays Post 3 of 3!!!!!
Well the votes have been counted and verified and the results are in ................................
After just one day of harvesting they have enough cells - how about that people - yup I am chuffed, chuffed, chuffed!!!!!!!!!!!!!!!!!!!
That is so cool - nobody even thought I would be able to harvest until Friday and Saturday - and the unit is not open weekends they had already asked a member of staff to come in on Saturday to do my harvesting - see no faith these doctors lololol.
All being well may be able to go home 2moro - as feeling sooo much better crohns wise and all my harvesting done :-) :-) :-)
Just gotta get a whole new schedule from Claire now as all tests n stuff gotta be re-booked! (again, again, again lol)
Well I'm a happy little harvested bunny tonight.
P xxx
After just one day of harvesting they have enough cells - how about that people - yup I am chuffed, chuffed, chuffed!!!!!!!!!!!!!!!!!!!
That is so cool - nobody even thought I would be able to harvest until Friday and Saturday - and the unit is not open weekends they had already asked a member of staff to come in on Saturday to do my harvesting - see no faith these doctors lololol.
All being well may be able to go home 2moro - as feeling sooo much better crohns wise and all my harvesting done :-) :-) :-)
Just gotta get a whole new schedule from Claire now as all tests n stuff gotta be re-booked! (again, again, again lol)
Well I'm a happy little harvested bunny tonight.
P xxx
Todays Post 2 of 3!!!!!
Well got the call CD34 stem cell levels were good to go for the harvesting - WEY HEY!!!!!!!!!!!!!!!!!!!!!!!!
So off I trotted to the day unit to be looked after by Gemma, Sarah and Phillip and all - who I must say looked after me wonderfully on Monday when I first came in feeling very very poorly!
I had my femral line put in (not the most pleasant experience but ho hum) - and away we went with the harvest :-)
So off I trotted to the day unit to be looked after by Gemma, Sarah and Phillip and all - who I must say looked after me wonderfully on Monday when I first came in feeling very very poorly!
I had my femral line put in (not the most pleasant experience but ho hum) - and away we went with the harvest :-)
ME BEING HARVESTED!!
WOT WAS COLLECTED - YELLOW STUFF PLASMA (I THINK LOL)
THE SHINY SHINY RED STUFF MY PRECIOUS STEM CELLS!
Todays Post 1 of 3!!!!!
Ummmm Interesting ……
Yesterday:
Normal stuff bloods, docs n all that stuff waiting for certain levels to drop other to increase I get so confused – but started to feel a little better - then came lunch lets just say I wont be eating ‘tinned fruit’ for a while – but that’s not a story for the blog people sorry – you never know who is looking in lol
Today – ooh lots of new things – feel like I have been kicked by a mule …………… so the GCSF injections are working GROW YOU LITTLE STEM CELLS GROW!!!!!
Oh and my hair – kinda quite a lot came out in the shower well a lot more than normal its getting weak even just after those 2 days of chemo …………BANDANAS AT THE READY – No Jill NOT bananas, cant have them I’m neutropenic lol
Just sitting here waiting for the stem cell count (CD34 levels I think) to come back to see if I’m good for harvesting – lets keep our bits crossed eh!!
Thanks to eveyone for your messages - Its great to read em and know Im not alone in here lol
Not patiently waiting P xxxxxxxxxxxx
Yesterday:
Normal stuff bloods, docs n all that stuff waiting for certain levels to drop other to increase I get so confused – but started to feel a little better - then came lunch lets just say I wont be eating ‘tinned fruit’ for a while – but that’s not a story for the blog people sorry – you never know who is looking in lol
Today – ooh lots of new things – feel like I have been kicked by a mule …………… so the GCSF injections are working GROW YOU LITTLE STEM CELLS GROW!!!!!
Oh and my hair – kinda quite a lot came out in the shower well a lot more than normal its getting weak even just after those 2 days of chemo …………BANDANAS AT THE READY – No Jill NOT bananas, cant have them I’m neutropenic lol
Just sitting here waiting for the stem cell count (CD34 levels I think) to come back to see if I’m good for harvesting – lets keep our bits crossed eh!!
Thanks to eveyone for your messages - Its great to read em and know Im not alone in here lol
Not patiently waiting P xxxxxxxxxxxx
Tuesday, 8 September 2009
Been Poorly - Sorry for not updating :-(
Hi All
Sorry it has been very quiet here of late but been a bit poorly – actually properly Crohns Disease kinda sick – so did the usual and hid from the world!!
I am now back in hospital as of yesterday, and possibly feeling slightly better, but all my schedule has gone a bit wrong again lol (Just for a change)
Been having a wonderful day with lots of fun with canulas (in my arms and my feet!!) for IV antibiotics for my Crohns and I am also Neutrpenic (probably spelt these wrong sorry) (neutropenic – low white count very open to infection) and mountains of blood tests
Thanks to my newbie message leavers - cheers
Maybe staying in til I’m better and then do the harvesting whilst im here not too yet – playing it by ear.
Will update when summat exciting happens lolololol
P xxxxxxxxxxxxxxxxxxxxx
Sorry it has been very quiet here of late but been a bit poorly – actually properly Crohns Disease kinda sick – so did the usual and hid from the world!!
I am now back in hospital as of yesterday, and possibly feeling slightly better, but all my schedule has gone a bit wrong again lol (Just for a change)
Been having a wonderful day with lots of fun with canulas (in my arms and my feet!!) for IV antibiotics for my Crohns and I am also Neutrpenic (probably spelt these wrong sorry) (neutropenic – low white count very open to infection) and mountains of blood tests
Thanks to my newbie message leavers - cheers
Maybe staying in til I’m better and then do the harvesting whilst im here not too yet – playing it by ear.
Will update when summat exciting happens lolololol
P xxxxxxxxxxxxxxxxxxxxx
Sunday, 30 August 2009
Weight gain issue lol
Well I wish I could put the weight gain down to the food - but unfortunately not! Its the large amounts of fluids being pumped into me - managed to gain 3 kilos (just short of 7 pounds) in 26 hours!!! lolololol
It is going down now - they gave me summat to make me pee more and more and more lol.
Its not been a bad couple of days not a great deal of sleep - but hey its a hospital.
I must say the staff are great.
I shall be off home this afternoon :-)
I think Bruv No 2 coming over to see me 2moro so that will be good - I promised to cook him shepards pie/cottage pie whatever it is lol, I'm too good to him lol.
Think I might pop down to the restuarant for a bacon sandwich now, dont fancy cold toast n soggy cereal on the ward.
Signing off for now.
P xxxxxxxxxxx
It is going down now - they gave me summat to make me pee more and more and more lol.
Its not been a bad couple of days not a great deal of sleep - but hey its a hospital.
I must say the staff are great.
I shall be off home this afternoon :-)
I think Bruv No 2 coming over to see me 2moro so that will be good - I promised to cook him shepards pie/cottage pie whatever it is lol, I'm too good to him lol.
Think I might pop down to the restuarant for a bacon sandwich now, dont fancy cold toast n soggy cereal on the ward.
Signing off for now.
P xxxxxxxxxxx
Friday, 28 August 2009
I been CHEMO'D!!!!!!!!!!!!!!!!!!!!!!!!!
Well im in the hospital (got a room) thought I was gonna be on the ward for this bit - but hey they know im special - nooooooooooooo not that kinda special!! lol
I have a tv, stereo, kettle, bathroom/shower, a fridge - (so no need to drive to London with the mini fridge Cissy - all sorted but thanks for the offer!!)
OOhh yeah the reason why Im here lol
Well its been started had my first dose of Chemo and some other stuff Mesna to help my kidneys cope with the chemo.
Gonna be attached to a drip machine practically all the time im here -
Feel a bit queasy - but that is probably the thought of NHS dinner lol nah its not that bad!!
(Well that made the staff laff lol)
Yes well not alot else to say really - except im here til sunday morning.
I shall update if summat intesresting happens - ooh dinner time now!
Thanks for looking in
a chemo'd P xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
I have a tv, stereo, kettle, bathroom/shower, a fridge - (so no need to drive to London with the mini fridge Cissy - all sorted but thanks for the offer!!)
OOhh yeah the reason why Im here lol
Well its been started had my first dose of Chemo and some other stuff Mesna to help my kidneys cope with the chemo.
Gonna be attached to a drip machine practically all the time im here -
Feel a bit queasy - but that is probably the thought of NHS dinner lol nah its not that bad!!
(Well that made the staff laff lol)
Yes well not alot else to say really - except im here til sunday morning.
I shall update if summat intesresting happens - ooh dinner time now!
Thanks for looking in
a chemo'd P xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Tuesday, 25 August 2009
For over 20 years I’ve been a sufferer of Crohns disease
After all this stuff maybe a little remission
Pretty please, pretty please, pretty please
Just 3 days left til lift-off – it’s all running around in my head
My own little harvest festival
That’s assuming the NHS has a bed
All my treatment n procedures being done a Guy’s
I managed to pass all the tests
Unfortunately no diploma, so it doesn’t mean I’m wise
Trying to find summat that rhymes with chemo
I suppose if it turns me orange
I could say I’d end up looking like Nemo!
Another tricky one is the Stem Cell Transplant
Why are all these words so tricky?
Racking my brain for a rhyme – but sorry I just cant!
First we have the harvest, the transplant is to follow
It’s gonna make me kinda sick
No doubt sometimes in self-pity I shall wallow
It’s pioneering stuff, a shot at being in good health
It could drastically change my life
That’s when you can truly call me a woman of REAL WEALTH!! :-)
After all this stuff maybe a little remission
Pretty please, pretty please, pretty please
Just 3 days left til lift-off – it’s all running around in my head
My own little harvest festival
That’s assuming the NHS has a bed
All my treatment n procedures being done a Guy’s
I managed to pass all the tests
Unfortunately no diploma, so it doesn’t mean I’m wise
Trying to find summat that rhymes with chemo
I suppose if it turns me orange
I could say I’d end up looking like Nemo!
Another tricky one is the Stem Cell Transplant
Why are all these words so tricky?
Racking my brain for a rhyme – but sorry I just cant!
First we have the harvest, the transplant is to follow
It’s gonna make me kinda sick
No doubt sometimes in self-pity I shall wallow
It’s pioneering stuff, a shot at being in good health
It could drastically change my life
That’s when you can truly call me a woman of REAL WEALTH!! :-)
Thursday, 20 August 2009
All signed and sealed and next week I'm theirs lol
YEP - DONE IT!!
had consent appt today with Jenny (Doctor) signed all the paperwork (2 consent forms) and went through the procedure/plan again it stands as in previous post - and this time next week (if there is a bed!!) I will have had my first dose of chemo - SCARY S**T!!
It did cross my mind whilst in my appointment as to why I am doing this through choice - for some there is no real choice, mine is purely a quality of life decision not a mortality issue!
But hey had crohn's for over 20 years now - so all my adult life - and probably spent 5 of those years in the toilet!! and wow alot of time in hospital and everyday in pain so maybe this will change my life for the better ................. we shall wait and see!
Yeah gonna get very sick and spend quite alot of time in hospital but hey if it works it will hopefully save me spending alot of time being sick and being in hospital ...........lol there is some kinda logic in there honest!
Wow 2 posts in one day even if one is just pretty pics (they take ages to upload lol)- time for a rest now - I hear you all breathe a sigh of relief :-)
I will sleep and try n think of something witty for my next post! maybe even a poem lol
More comments pleaseeeeeeeeeeeeeeeeeeeeeeeeeeeeee
P xxxxxxxxxxxxxxxx
had consent appt today with Jenny (Doctor) signed all the paperwork (2 consent forms) and went through the procedure/plan again it stands as in previous post - and this time next week (if there is a bed!!) I will have had my first dose of chemo - SCARY S**T!!
It did cross my mind whilst in my appointment as to why I am doing this through choice - for some there is no real choice, mine is purely a quality of life decision not a mortality issue!
But hey had crohn's for over 20 years now - so all my adult life - and probably spent 5 of those years in the toilet!! and wow alot of time in hospital and everyday in pain so maybe this will change my life for the better ................. we shall wait and see!
Yeah gonna get very sick and spend quite alot of time in hospital but hey if it works it will hopefully save me spending alot of time being sick and being in hospital ...........lol there is some kinda logic in there honest!
Wow 2 posts in one day even if one is just pretty pics (they take ages to upload lol)- time for a rest now - I hear you all breathe a sigh of relief :-)
I will sleep and try n think of something witty for my next post! maybe even a poem lol
More comments pleaseeeeeeeeeeeeeeeeeeeeeeeeeeeeee
P xxxxxxxxxxxxxxxx
More pics - for the ladies!! :-)
Phil Vickery
Jonny n Me!
Matthew Tait
Now that's wot I call bonding!
Bottoms Up!
Now that's wot I call bonding!
Bottoms Up!
Simon Shaw 
Steve Borthwick
Jonny Wilkinson kicking straight to Doris lol
Tuesday, 18 August 2009
Some pics to share :-)
Went for a walk Tuesday evening around the corner to Greenland Dock - took a few snaps and thought I would share them with you all.
A Lonely Black Swan
Pure Contrast!
The View across the Thames from Greenland Dock
A view down Greenland Dock
Nothing medical to report for a change - well except got the broken tooth filed down, my consent appt Thursday!! Sign my life away lol.
P :-) xxx
Thursday, 13 August 2009
A change of Plan and Schedule and a new Photo!!
Whilst getting my Rugby player fix yesterday I had a call from Claire, consent appointment for today was cancelled until next week Thursday 20th, and they have been discussing me (well who can blame em lol)
They have revised my stem cell mobilisation and harvesting - it now reads as ......
27th and 28th August - into Guys for a couple of days for a spot of light chemo!! (Cyclophosphamide, for the medics amongst us), (yep not too sure you can use light and chemo in the same sentence but I just did!!) this is to suppress my stem cells - hoping they will spring back to millions and millions with the GCSF injections.
27th and 28th August - into Guys for a couple of days for a spot of light chemo!! (Cyclophosphamide, for the medics amongst us), (yep not too sure you can use light and chemo in the same sentence but I just did!!) this is to suppress my stem cells - hoping they will spring back to millions and millions with the GCSF injections.
29th, 30th and 31st - No Treatment. :-) ummm a Bank Hol weekend - me and hospitals have a nasty habit of mixing around Bank Hol weekends lol
1st Sept - Blood Test.
2nd, 3rd, 4th, 5th, 6th September- GCSF Injections (growth hormone factor thingy to mobilise my stem cells) - some of these done at home some at the hospital with a few more blood tests thrown in for good measure!)
7th - STEM CELL HARVEST!!
8th and 9th - possible Stem Cell Harvest - kinda depends on how many I harvested - still not too sure if harvesting is being done as an in-patient or not - depends on the veins!
Right now for the important bit - WOW!!!!! wot a great day yesterday - all the players were great taking time out for photos and signing shirts n stuff as always.
Hence the new photo !!- Jonny and the ugly bird lol (yep thats me!!) I did think it was a little soon to be mentioning the harvesting of my eggs as it was the first time we have met - but hey maybe next time lololololol
Had a wicked day with Elaine and Amy - who we have discovered is an event queen - she loves it, knows jack s**t about Rugby but loves a hottie lol
Bit sorry I missed Joe Worsley for a signature this time :-( but hey ya cant have it all - WHY BLOODY NOT I SAY!!
Will try n post up a few pics from yesterday :-)
Paula xx very very :-) but very very tired!!
Tuesday, 11 August 2009
Well nothing to report on the hospital front cos I not been there - just for a change.
Off to Twickenham tomorrow (Wednesday) they have a fun day and open training session and signing session and there is a rumour Jonny Wilkinson will be there - not got his signature ........YET!! :-)
I have added a counter to my blog the other day - and a few of you have been looking ...... but no comments!! Come one people you must have something to say! ?????
Do you think I am doing the right thing?
Do ya think I am chatting s**t?
Egg harvesting - any views on that?
What did you have for dinner? lol
I had a lovely weekend round at Col n Elaine for dinner and Wii games saturday :-)
and boat trip down the Thames to Greenwich with Mary and K-Le - excellent and informative commentary by Ben - thanx to you all, follwed by lunch and a serious nap!!!! crashed and burned!
I will update Thursday - my consent appointment!! hey might even have some news on my possible abscess lol.
Night night all
Paula xxxxxxxxxxx
Off to Twickenham tomorrow (Wednesday) they have a fun day and open training session and signing session and there is a rumour Jonny Wilkinson will be there - not got his signature ........YET!! :-)
I have added a counter to my blog the other day - and a few of you have been looking ...... but no comments!! Come one people you must have something to say! ?????
Do you think I am doing the right thing?
Do ya think I am chatting s**t?
Egg harvesting - any views on that?
What did you have for dinner? lol
I had a lovely weekend round at Col n Elaine for dinner and Wii games saturday :-)
and boat trip down the Thames to Greenwich with Mary and K-Le - excellent and informative commentary by Ben - thanx to you all, follwed by lunch and a serious nap!!!! crashed and burned!
I will update Thursday - my consent appointment!! hey might even have some news on my possible abscess lol.
Night night all
Paula xxxxxxxxxxx
Thursday, 6 August 2009
6 days off - WEYHEY!!!!!
:-) :-) :-) face - got 6 days off no medical people to see til next Thursday!!
I had Osteopath last Friday
Gastro appt - Monday, just a check up n chat (bloods in a few weeks), but apparently I have passed the tests I had last week :-) also got a gold star in lethargy, stomach cramps and diarrhea and aches in my joints just for a change lol, dont ya just love crohns disease!! also realised my hospital notes weigh nearly as much as I do!!
Tues - Doctors appt - Vitamin B12 and Depo Inj
Wed - Nuclear Med (yup I was radiated lol) had to have a test to see if my heart was working ok - they need a base line reading before they zap me with chemo.
and today Thursday I had an MRI scan - to check if I have an abscess in my a**e!! yep not on it or around it ................... UP IT!! Supposed to be kind of common in peeps with crohns (I know maybe too much information) as if I do have one its gotta be sorted as any kind of infection could hold everything up ................ GGGGGGGGrrrrrrrrrrrrr.
And now no-one medical to see until next Thursday - my consent appt day - they day of no return!! being a proper grown up!
I would like to wish everyone a happy Jamaican Independence Day today! I know this because the wonderful Jeanette (she works in the pharmacy at Boots) is going out on the lash tonight (Soo Jealous!!) She has also promised to share her Chicken, Rice and Peas next time she cooks - I missed out this weekend, but she now has my mobile number and will call next time she cooks. Pauline's (my neighbour/friend) who is a wicked cook has also often donated chicken, rice and peas to the Paula get well fund!! and Mary with her 'get well chicken casserole' - yeah I know they spoil me!! - but hey I'm worth it lolololol
I had Osteopath last Friday
Gastro appt - Monday, just a check up n chat (bloods in a few weeks), but apparently I have passed the tests I had last week :-) also got a gold star in lethargy, stomach cramps and diarrhea and aches in my joints just for a change lol, dont ya just love crohns disease!! also realised my hospital notes weigh nearly as much as I do!!
Tues - Doctors appt - Vitamin B12 and Depo Inj
Wed - Nuclear Med (yup I was radiated lol) had to have a test to see if my heart was working ok - they need a base line reading before they zap me with chemo.
and today Thursday I had an MRI scan - to check if I have an abscess in my a**e!! yep not on it or around it ................... UP IT!! Supposed to be kind of common in peeps with crohns (I know maybe too much information) as if I do have one its gotta be sorted as any kind of infection could hold everything up ................ GGGGGGGGrrrrrrrrrrrrr.
And now no-one medical to see until next Thursday - my consent appt day - they day of no return!! being a proper grown up!
I would like to wish everyone a happy Jamaican Independence Day today! I know this because the wonderful Jeanette (she works in the pharmacy at Boots) is going out on the lash tonight (Soo Jealous!!) She has also promised to share her Chicken, Rice and Peas next time she cooks - I missed out this weekend, but she now has my mobile number and will call next time she cooks. Pauline's (my neighbour/friend) who is a wicked cook has also often donated chicken, rice and peas to the Paula get well fund!! and Mary with her 'get well chicken casserole' - yeah I know they spoil me!! - but hey I'm worth it lolololol
Well that's kinda it for now - if anyone is reading this?????????????? If you are, any chance of a 'hello' comment or 'shut up' or something please as I got no idea if anyone is out there!
Tuesday, 28 July 2009
Spent the weekend in trauma!!
Well took myself of to bed Friday afternoon for a nap - as I felt like c**p and missed a call from Claire asking me to ring her, by the time I crawled outta my pit she had gone home. Was gonna go on boat trip down the Thames with Mary but had to take a rain check :-( I will get on one of those boats one day lol
So my wild and wonderful imagination was working overtime ALL weekend as to what had gone wrong with my tests I had done Thursday and what they had found and was thinking everything was all gonna be cancelled.
Well I did get some time out - spent 5 hours playing Wii resort games with Elaine and Colin on saturday - it was wicked, cheers guys!! (mind you my little wings were hanging off Sunday lololol)
Saw Claire yesterday and found out what the call was about - more harvesting ...... of my eggs!!, being a woman of child bearing age they have to offer to harvest and freeze my eggs - just in case I ever want children, well being 42 (and a half next week) - I decided against this, (yup another life changing decision) I will never be a parent! ( I can hear some of you sighing with relief no little paula's running around!)
Had some bloods done for Gastro yesterday (appt next Monday) and my lung function test for the transplant so keep yr bits crossed they are ok.
Most people have a diary or calender I have an A4 sheet with the next month drawn up on it - out of the next 31 days I have a medical appointments of one description or another or injections for 13 of those days ......... so far!! (Im sure this number will increase) wow Im gonna be bloody busy - no time to be sick lololololol.
Well thats it for today - more to follow im sure :-)
Thanks for looking in.
Paula xx
So my wild and wonderful imagination was working overtime ALL weekend as to what had gone wrong with my tests I had done Thursday and what they had found and was thinking everything was all gonna be cancelled.
Well I did get some time out - spent 5 hours playing Wii resort games with Elaine and Colin on saturday - it was wicked, cheers guys!! (mind you my little wings were hanging off Sunday lololol)
Saw Claire yesterday and found out what the call was about - more harvesting ...... of my eggs!!, being a woman of child bearing age they have to offer to harvest and freeze my eggs - just in case I ever want children, well being 42 (and a half next week) - I decided against this, (yup another life changing decision) I will never be a parent! ( I can hear some of you sighing with relief no little paula's running around!)
Had some bloods done for Gastro yesterday (appt next Monday) and my lung function test for the transplant so keep yr bits crossed they are ok.
Most people have a diary or calender I have an A4 sheet with the next month drawn up on it - out of the next 31 days I have a medical appointments of one description or another or injections for 13 of those days ......... so far!! (Im sure this number will increase) wow Im gonna be bloody busy - no time to be sick lololololol.
Well thats it for today - more to follow im sure :-)
Thanks for looking in.
Paula xx
Friday, 24 July 2009
Todays Offering - a bit more info :-)
Hiya
Well went to see Clare yesterday (Transplant Nurse) and had a good chat about the harvesting of the stem cells - we get that done first then we will discuss the transplant or its just information overload for my little brain!
Has a few tests yesterday - loads and loads of bloods, ecg, chest x-ray - still got to have mri scan (6th Aug) and lung function test (27th July) but lets all keep our fingers crossed these are ok and this can still go ahead otherwise I shall feel totally robbed and hugely disappointed!!
All being well with the tests I shall do all the consent stuff on the 13th Aug.
The the plan is:
21st, 22nd, 23rd August - I get to stab myself with needles twice a day (just call me lucky) I need to inject myself with with G-CSF its a growth factor injection so my body make loads and loads of stem cells for harvesting.
Then on the 24th, 25th, 26th August - if I have enough stem cells (if not enough cells I will need more injections).
I will be admitted to Guys for the harvesting - as I have really bad veins in my arms they cant do it as an outpatient and need to go in through my femoral line (groin) and I cant be wandering around South East London with a tube hanging outta my groin now can I lol, all being well they will get sufficient cells and pop them in the freezer for transplant later on.
The hormone factor can make you a bit achey in some joints n stuff and a bit feverish but nothing too major.
Well thats about it really for todays offering - if you really want to read up on all this you can go to Leukaemia Research or Macmillan Cancer websites and look up stem cell transplants - its the same procedure for the treatment of crohn's as is for cancer.
I will let you know if anything else interesting happens - if not it will be quiet here for a couple of weeks :-)
Bye for now
Paula xx
Well went to see Clare yesterday (Transplant Nurse) and had a good chat about the harvesting of the stem cells - we get that done first then we will discuss the transplant or its just information overload for my little brain!
Has a few tests yesterday - loads and loads of bloods, ecg, chest x-ray - still got to have mri scan (6th Aug) and lung function test (27th July) but lets all keep our fingers crossed these are ok and this can still go ahead otherwise I shall feel totally robbed and hugely disappointed!!
All being well with the tests I shall do all the consent stuff on the 13th Aug.
The the plan is:
21st, 22nd, 23rd August - I get to stab myself with needles twice a day (just call me lucky) I need to inject myself with with G-CSF its a growth factor injection so my body make loads and loads of stem cells for harvesting.
Then on the 24th, 25th, 26th August - if I have enough stem cells (if not enough cells I will need more injections).
I will be admitted to Guys for the harvesting - as I have really bad veins in my arms they cant do it as an outpatient and need to go in through my femoral line (groin) and I cant be wandering around South East London with a tube hanging outta my groin now can I lol, all being well they will get sufficient cells and pop them in the freezer for transplant later on.
The hormone factor can make you a bit achey in some joints n stuff and a bit feverish but nothing too major.
Well thats about it really for todays offering - if you really want to read up on all this you can go to Leukaemia Research or Macmillan Cancer websites and look up stem cell transplants - its the same procedure for the treatment of crohn's as is for cancer.
I will let you know if anything else interesting happens - if not it will be quiet here for a couple of weeks :-)
Bye for now
Paula xx
p.s. If you new to all this as I am!! The newest messages are at the top of the page - just click on the archive link on the right hand side to read older messages - it might make more sense then lolololol or not!!
Tuesday, 21 July 2009
Thankyou and Hello
I would just like to say a HUGEEEEEEEE thankyou Jill for helping me set up this blog so you can all blame her lolololol.
I was admiring her blog with all her handmade cards on it and had thought about doing a blog but didnt know how - there is no stopping me now people you have been warned.
No doubt I shall bug the life out of her for the next few days/weeks and even months asking silly 'How do you do' questions!!
And also to say Hello as she is my first follower :-)
I was admiring her blog with all her handmade cards on it and had thought about doing a blog but didnt know how - there is no stopping me now people you have been warned.
No doubt I shall bug the life out of her for the next few days/weeks and even months asking silly 'How do you do' questions!!
And also to say Hello as she is my first follower :-)
Hi, well most of you will know me and thats why you are here!! or you are just surfing the net and found me. HELLOOOOOOOOOOOOOO IT'SMEEEEEEEEEEEE!! is that you?? lol
Well whoever you are you are all welcome as are you comments (good, bad or indifferent)
I am hopefully about to embark on a new, scary and possibly exciting journey - Stem Cell Replacement Therapy for the treatment of my crohn's disease! (subject to a few tests - NO not general knowledge tests - the medical kind)
I will hopefully be updating this blog as often as possible subject to my health and internet connections!
I could be in hospital for 4 to 6 weeks and had to do something to annoy you all in case I use up all my free mins n texts on my mobile and obviously to keep me sane ...... ummm I hear you say - sane - NEVER!!
The plan so far is to harvest/collect the stem cells (my own I hasten to add not having any stem cells from strangers!) early to mid August 2009 - and to have the dreaded chemotherapy and replacement early to mid September 2009 - if the swine flu doesn't get me first lol.
Well whoever you are you are all welcome as are you comments (good, bad or indifferent)
I am hopefully about to embark on a new, scary and possibly exciting journey - Stem Cell Replacement Therapy for the treatment of my crohn's disease! (subject to a few tests - NO not general knowledge tests - the medical kind)
I will hopefully be updating this blog as often as possible subject to my health and internet connections!
I could be in hospital for 4 to 6 weeks and had to do something to annoy you all in case I use up all my free mins n texts on my mobile and obviously to keep me sane ...... ummm I hear you say - sane - NEVER!!
The plan so far is to harvest/collect the stem cells (my own I hasten to add not having any stem cells from strangers!) early to mid August 2009 - and to have the dreaded chemotherapy and replacement early to mid September 2009 - if the swine flu doesn't get me first lol.
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