Well I wish I could put the weight gain down to the food - but unfortunately not! Its the large amounts of fluids being pumped into me - managed to gain 3 kilos (just short of 7 pounds) in 26 hours!!! lolololol
It is going down now - they gave me summat to make me pee more and more and more lol.
Its not been a bad couple of days not a great deal of sleep - but hey its a hospital.
I must say the staff are great.
I shall be off home this afternoon :-)
I think Bruv No 2 coming over to see me 2moro so that will be good - I promised to cook him shepards pie/cottage pie whatever it is lol, I'm too good to him lol.
Think I might pop down to the restuarant for a bacon sandwich now, dont fancy cold toast n soggy cereal on the ward.
Signing off for now.
P xxxxxxxxxxx
Sunday, 30 August 2009
Friday, 28 August 2009
I been CHEMO'D!!!!!!!!!!!!!!!!!!!!!!!!!
Well im in the hospital (got a room) thought I was gonna be on the ward for this bit - but hey they know im special - nooooooooooooo not that kinda special!! lol
I have a tv, stereo, kettle, bathroom/shower, a fridge - (so no need to drive to London with the mini fridge Cissy - all sorted but thanks for the offer!!)
OOhh yeah the reason why Im here lol
Well its been started had my first dose of Chemo and some other stuff Mesna to help my kidneys cope with the chemo.
Gonna be attached to a drip machine practically all the time im here -
Feel a bit queasy - but that is probably the thought of NHS dinner lol nah its not that bad!!
(Well that made the staff laff lol)
Yes well not alot else to say really - except im here til sunday morning.
I shall update if summat intesresting happens - ooh dinner time now!
Thanks for looking in
a chemo'd P xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
I have a tv, stereo, kettle, bathroom/shower, a fridge - (so no need to drive to London with the mini fridge Cissy - all sorted but thanks for the offer!!)
OOhh yeah the reason why Im here lol
Well its been started had my first dose of Chemo and some other stuff Mesna to help my kidneys cope with the chemo.
Gonna be attached to a drip machine practically all the time im here -
Feel a bit queasy - but that is probably the thought of NHS dinner lol nah its not that bad!!
(Well that made the staff laff lol)
Yes well not alot else to say really - except im here til sunday morning.
I shall update if summat intesresting happens - ooh dinner time now!
Thanks for looking in
a chemo'd P xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Tuesday, 25 August 2009
For over 20 years I’ve been a sufferer of Crohns disease
After all this stuff maybe a little remission
Pretty please, pretty please, pretty please
Just 3 days left til lift-off – it’s all running around in my head
My own little harvest festival
That’s assuming the NHS has a bed
All my treatment n procedures being done a Guy’s
I managed to pass all the tests
Unfortunately no diploma, so it doesn’t mean I’m wise
Trying to find summat that rhymes with chemo
I suppose if it turns me orange
I could say I’d end up looking like Nemo!
Another tricky one is the Stem Cell Transplant
Why are all these words so tricky?
Racking my brain for a rhyme – but sorry I just cant!
First we have the harvest, the transplant is to follow
It’s gonna make me kinda sick
No doubt sometimes in self-pity I shall wallow
It’s pioneering stuff, a shot at being in good health
It could drastically change my life
That’s when you can truly call me a woman of REAL WEALTH!! :-)
After all this stuff maybe a little remission
Pretty please, pretty please, pretty please
Just 3 days left til lift-off – it’s all running around in my head
My own little harvest festival
That’s assuming the NHS has a bed
All my treatment n procedures being done a Guy’s
I managed to pass all the tests
Unfortunately no diploma, so it doesn’t mean I’m wise
Trying to find summat that rhymes with chemo
I suppose if it turns me orange
I could say I’d end up looking like Nemo!
Another tricky one is the Stem Cell Transplant
Why are all these words so tricky?
Racking my brain for a rhyme – but sorry I just cant!
First we have the harvest, the transplant is to follow
It’s gonna make me kinda sick
No doubt sometimes in self-pity I shall wallow
It’s pioneering stuff, a shot at being in good health
It could drastically change my life
That’s when you can truly call me a woman of REAL WEALTH!! :-)
Thursday, 20 August 2009
All signed and sealed and next week I'm theirs lol
YEP - DONE IT!!
had consent appt today with Jenny (Doctor) signed all the paperwork (2 consent forms) and went through the procedure/plan again it stands as in previous post - and this time next week (if there is a bed!!) I will have had my first dose of chemo - SCARY S**T!!
It did cross my mind whilst in my appointment as to why I am doing this through choice - for some there is no real choice, mine is purely a quality of life decision not a mortality issue!
But hey had crohn's for over 20 years now - so all my adult life - and probably spent 5 of those years in the toilet!! and wow alot of time in hospital and everyday in pain so maybe this will change my life for the better ................. we shall wait and see!
Yeah gonna get very sick and spend quite alot of time in hospital but hey if it works it will hopefully save me spending alot of time being sick and being in hospital ...........lol there is some kinda logic in there honest!
Wow 2 posts in one day even if one is just pretty pics (they take ages to upload lol)- time for a rest now - I hear you all breathe a sigh of relief :-)
I will sleep and try n think of something witty for my next post! maybe even a poem lol
More comments pleaseeeeeeeeeeeeeeeeeeeeeeeeeeeeee
P xxxxxxxxxxxxxxxx
had consent appt today with Jenny (Doctor) signed all the paperwork (2 consent forms) and went through the procedure/plan again it stands as in previous post - and this time next week (if there is a bed!!) I will have had my first dose of chemo - SCARY S**T!!
It did cross my mind whilst in my appointment as to why I am doing this through choice - for some there is no real choice, mine is purely a quality of life decision not a mortality issue!
But hey had crohn's for over 20 years now - so all my adult life - and probably spent 5 of those years in the toilet!! and wow alot of time in hospital and everyday in pain so maybe this will change my life for the better ................. we shall wait and see!
Yeah gonna get very sick and spend quite alot of time in hospital but hey if it works it will hopefully save me spending alot of time being sick and being in hospital ...........lol there is some kinda logic in there honest!
Wow 2 posts in one day even if one is just pretty pics (they take ages to upload lol)- time for a rest now - I hear you all breathe a sigh of relief :-)
I will sleep and try n think of something witty for my next post! maybe even a poem lol
More comments pleaseeeeeeeeeeeeeeeeeeeeeeeeeeeeee
P xxxxxxxxxxxxxxxx
Tuesday, 18 August 2009
Some pics to share :-)
Thursday, 13 August 2009
A change of Plan and Schedule and a new Photo!!
Whilst getting my Rugby player fix yesterday I had a call from Claire, consent appointment for today was cancelled until next week Thursday 20th, and they have been discussing me (well who can blame em lol)
They have revised my stem cell mobilisation and harvesting - it now reads as ......
27th and 28th August - into Guys for a couple of days for a spot of light chemo!! (Cyclophosphamide, for the medics amongst us), (yep not too sure you can use light and chemo in the same sentence but I just did!!) this is to suppress my stem cells - hoping they will spring back to millions and millions with the GCSF injections.
27th and 28th August - into Guys for a couple of days for a spot of light chemo!! (Cyclophosphamide, for the medics amongst us), (yep not too sure you can use light and chemo in the same sentence but I just did!!) this is to suppress my stem cells - hoping they will spring back to millions and millions with the GCSF injections.
29th, 30th and 31st - No Treatment. :-) ummm a Bank Hol weekend - me and hospitals have a nasty habit of mixing around Bank Hol weekends lol
1st Sept - Blood Test.
2nd, 3rd, 4th, 5th, 6th September- GCSF Injections (growth hormone factor thingy to mobilise my stem cells) - some of these done at home some at the hospital with a few more blood tests thrown in for good measure!)
7th - STEM CELL HARVEST!!
8th and 9th - possible Stem Cell Harvest - kinda depends on how many I harvested - still not too sure if harvesting is being done as an in-patient or not - depends on the veins!
Right now for the important bit - WOW!!!!! wot a great day yesterday - all the players were great taking time out for photos and signing shirts n stuff as always.
Hence the new photo !!- Jonny and the ugly bird lol (yep thats me!!) I did think it was a little soon to be mentioning the harvesting of my eggs as it was the first time we have met - but hey maybe next time lololololol
Had a wicked day with Elaine and Amy - who we have discovered is an event queen - she loves it, knows jack s**t about Rugby but loves a hottie lol
Bit sorry I missed Joe Worsley for a signature this time :-( but hey ya cant have it all - WHY BLOODY NOT I SAY!!
Will try n post up a few pics from yesterday :-)
Paula xx very very :-) but very very tired!!
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