Thursday, 29 October 2009

Hiya all,
Thanks for you messages :-)
no - not really anymore interesting facts about my room - except I am sure it is getting smaller!!

Oh and would you bloody believe it - a gold cap came loose today nearly swallowed it - well gonna try n get a dentist with a little cement to pop down n stick it back in lol.

Blood count still oh whole fat ZERO! - probably will be til Saturday when I start to have some more GCSF (injections like before to stimulate my stem cells for my harvesting, grown hormone factor stuff) - well not alot to tell ya cos I cant escape - but if I run to the door when they take the bins out I can see outside lol - yeah I know I gotta window ................ but its a 'different' bit of outside!!

luv to all
P xxxxxx

Tuesday, 27 October 2009

Feel like a prisoner with haircut to match lol

Hi All
Still locked in my little room - count hit zero, yesterday and today (but that's the idea) so cant go anywhere - getting a little cabin feverish but ho-hum and very tired - keep doing the whole nodding dog thing - will break my neck a this rate lol.

Had half hour reflexology yesterday which was very pleasant :-)

Well not alot else I can tell you except that .............................................................................................. my room is 17 1/3 piggy steps by 14 1/2 piggy steps!!

LOLOLOL
Pxxxxxxxxxxxxxxx

Sunday, 25 October 2009

The Chemo is doing it's job .....................

Well the chemo is doing it's job - (sorry Jill, have to put in the nasty bits too) bloods are dropping as off yesterday morning I am officially Neutropenic - very low blood counts - i.e. the chemo is working - killing off all the old cells - then the stem cells will eventually grow, grow, grow replace the old immune system, yeah thats about it really lol.

So I am locked in my room - I am allowed visitors - HEALTHY ONES ONLY!! - not feeling too bad yesterday/today so far - but gotta hit the bottom before you can climb the ladder back up again.

It is kinda odd not being allowed out feel like a prisoner lol.

luv to all
P xxxxxxxxxxxx

Saturday, 24 October 2009

Week One – Short breakdown: HONEST IT IS ....... JUST LOOKS LOTS!!

Sorry peeps probably more for my benefit than yours
To help with the boredom – as feeling ok at the moment
Summat too look back on in the future
also if the entry is that boring it might help me sleep lol or you :-)

DAY 1 – SATURDAY 17TH OCTOBER 2009 - Chemo

DAY 2 – SUNDAY 18TH OCTOBER 2009 - Chemo

DAY 3 – MONDAY 19TH OCTOBER 2009 - ATG DAY – the rabbit stuff, no initial reaction, that followed.
More chemo – yeah I know repetitive aint it lol

Day 4 – TUESDAY 20TH OCTOBER 2009 - ATG – RABBIT DAY 2, had a slight reaction, temperature, feeling unwell for a good few hours but soon passed.
Carol popped up to see me briefly as poorly and Michael came to visiting in the evening so all in all turned into a good day.

DAY 5 WEDNESDAY 21ST OCTOBER 2009 - Met Lisa outside visiting hours downstairs had a wicked hour or so having coffee n McD’s for lunch (well it is in the same road so considered ‘on site’ well is in my eyes).

DAY 6 – THURSDAY 22ND OCOBER 2009 - Lots of lots of peeing thanx to the meds, as managed to gain almost a stone and a half due to fluid retention (fat cow)!

DAY 7 – FRIDAY 23RD OCTOBER 2009 (NOW DAY ZERO – LOL)
STEM CELL REPLACEMENT DAY – MY NEW BIRTHDAY
All went well and continues to do so.
I did manage to get a couple of hours (literally 2!) free in the morning so I was really bad!
I jumped in a cab outside popped home n had a HUGEEEEEEEEE squeeze of my boys – quick coffee with Carol n Shelia and popped to Tesco and came back to the hospital for my Stem cell replacement (given via IV drip)in the afternoon.
I think I could have got away with it but I could not resist the urge to purchase some Krispy Kreme donuts for the ward and the day unit – I think that was when they began to enquire as to where have you been?? lol – but hey – I think I got away with it lol.

So now we just sit back and wait – feeling ok but any day from today to next weekend all my blood counts will start to drop I shall be very unwell and get neutropenic (i.e. no immune system and in isolation and very open to infection anf just generally feeling like sh**e!)
Then it is just a case of getting over that waiting for the bloods to slowly rise and start to climb the ladder back up.
Its not gonna be easy I doubt but hey I am in wonderful hands I have you all out there routing for me – and HEY I GOT 2 BIRTHDAYS Now! …………… NUFF SAID LOL

Lovin ya all
P xxxxxxxxxx

Friday, 23 October 2009

ALSO HAPPY BIRTHDAY TO ME!!!!!!

Well apprently I am allowed to have this as my my new real official 2nd birthday of the year - Rachael said (the lovely dietician) so if there is an issue over this regarding gifts and cards next year please feel free to take the matter up with her!! lol ;-)
Well yep I HAVE BEEN TRANSPLANTED - no Ill effects - well maybe the cuppa the student made - appart from that IT'S ALL GOOD!!!!!!!!!!!!!!
And here to share with you all are some photos - lol yeah I know, Im sad but hey!!

THE DELIVERY VEHICLE LOL!
NOW THATS WOT I CALL SMOKIN BABY - AS THE CELLS EMERGE!!!!!
COOL OR WOT!!


THIS IS WHERE THE CELLS ARE WARMED TO BODY TEMP - POSH MICROWAVE REALLY LOL


YEP THIS IS WOT ALL THE FUSS IS ABOUT - STEM CELLS MINE ALL MINE!!


Well thats was my day PMSL - did you do anything good/interesting/different lol ??????????

Lovin ya all

Pxxxxxxxxxxxxxxxxxx

Today is THE DAY!! - TRANSPLANT DAY :-)

Well its finally here transplant day - which in medical hospital terms now becomes DAY 0 (zero)and 2moro day 0+1 and so on.

So you will have to excuse me if I use those terms from now on but this hospital jargon is kinda catching.


Also gotta say a Hugeeeeeeeee HAPPY TO YOU DAY to big, big bro Steve - cant wait to get well n outta here and come and see you and Jane and Maddie - and we can have day fishing - will be cool :-), have a good day and enjoy your dinner out 2nite - love to all.


More congrats in order too - my favourite niece - Sarah Bsc Hons (Who graduated from Loughborough earlier this year in Criminology) has a Job!!!!!!!!!!!! - yeahhhhhhhh well done you Sarzzzzzzzzzzzzzzzzzzzzzzzzzzzz, she will be working 3 days a week in a school with able bodied and physically handicapped children (I am sure she will be a very helpful member of the class lol!!) and she is also doing a 2 day a week course at Bucks Uni - gaining a psycological accreditation to her degree - She surely gets her brains from ............. yep must be her mothers side lol - so a fab fab day all round. Oh and her dad - that would be Bruv No 4 - is so excited too - he has this really odd idea she is now gonna pay rent PMSL!!!!! - I hope I spelt all this correctly and got it right - please sarz feel free to chastise me!!

Well I did try n post this up a around 6 am and had a technical error - or sleep deprivation - so here goes again!!

Lovin ya all - more to follow!!!!!!
P xxxxxxxxx

Wednesday, 21 October 2009

Well wot can I say .............

Thank you all so much for your comments - especially you Jill n Bruv No2 - have just screamed with laughter think the nurse thought I was having another reaction to the ATG.

Yes had a bit of a reaction yesterday so didn't feel very well, surprisingly none of the symptoms Jill describe PMSL.

Feeling a much brighter little 'bunny' today ........ ummmmmm can ya get bald bunnies??

Had a bit of a shock this morning - saw a man outside my window ................ I'M ON THE 8TH FLOOR!!!! think he is ok and not a stalker - will let ya know lol

The staff here are fab - well they have to be for putting up with me!
And Carol for feeding and generally amusing the boys whilst I am in here and the other million and one things she does, sometime she does things in my house and it takes me weeks to notice lol - I would be absolutely lost without her - I hope Stuart or Julie - passes on or reads this message to her cos she is a *************star ************

Doctors just been round happy with me so thats good - still have a weight gain issue with all the fluids they are pumping into me but may not get a many fluids today and a more or that nice little injection to make me pee loadsssssssssssss!!!!! so that should drop a few kilo's (2.25 pounds to a Kilo ok :-) its all metric here lol.

Singing off for now Baldy Bunny P xxxxxxxxxxxxx