Hi All
Yup it’s me again!!
Had a Gastro appt last week – all seems ok, keep getting a pain in my right side may have a bit of narrowing going on at a join in my intestine so gonna keep an eye on that, apart from that all seems ok.
Had a check up at Haematology Tuesday – everyone seemed very happy – bloods looked good, put on some weight about 9 stone now – yup I’m a fat baldy lol but hey Rachael (the dietician) is happy and trust me it’s hard to make Rachael smile lol,
So now just a waiting game really – waiting to get better ………… waiting to get sick lol
But I do kinda find myself in an odd situation – or different situation – physically and psychologically!
With the Crohns as unpredictable as it is, I kinda got to know the sign and symptoms having had it for so long so in some ways always knew where I stood or what to look out for.
With this transplant and being formatted (immune system wiped) so to speak and having to be so so so careful of germs and virus’ it is kinda strange ……………….. Sometimes find myself sitting round waiting to get sick!! As gotta be careful for months, so its all very strange and so far I have been quite well (well not a bad a predicted) – really tired but not too bad.
Ooh and the tiredness is different! Yeah weird I know! Used to feeling fatigued with the Crohns, body used to give in first followed by the head but this is the other way round my head/brain gives up first its like I hit a mental wall – then the body follows (I think it has no choice as brain too knackered to make it move lol)
Well thats about it - dont go back to hospital til the 7th and 8th Dec unless summat goes wrong!!
Bye for now P xxxxxxxxxxxxxxx
Thursday, 26 November 2009
Thursday, 12 November 2009
Brave Little Soldier ...... Not!
Hi All
Had clinic appt Tues which went well n don't wanna see me for 2 weeks which is great - just a bit concerned cos white cell count was quite high - but had to go back to day unit again today and it has gone down so that's good :-)
Had my Hickman line removed today - ouchhhhhhhh!! well actually I was really brave when they put the local anesthetic in - Gemma the nurse on the other hand was a complete wimp and I had to hold her hand - PMSL, that was the worse bit the rest was just pressure - Im sure it will hurt a bit later when the bruising comes out as it was well n grown truly in there!! - But Gemma n Katherine were great :-)
That's kinda it really - all going well so far :-) :-) :-) still trying to stay germ free!
P xxxxxxxxxxxxxxx
Had clinic appt Tues which went well n don't wanna see me for 2 weeks which is great - just a bit concerned cos white cell count was quite high - but had to go back to day unit again today and it has gone down so that's good :-)
Had my Hickman line removed today - ouchhhhhhhh!! well actually I was really brave when they put the local anesthetic in - Gemma the nurse on the other hand was a complete wimp and I had to hold her hand - PMSL, that was the worse bit the rest was just pressure - Im sure it will hurt a bit later when the bruising comes out as it was well n grown truly in there!! - But Gemma n Katherine were great :-)
That's kinda it really - all going well so far :-) :-) :-) still trying to stay germ free!
P xxxxxxxxxxxxxxx
Monday, 9 November 2009
Happy to be home :-)
Hi all
Been home nearly a week now - cant believe it!! feeling ok if very very tired - 2nd lot of chemo kickin in now :-( and trying to stay germ free!!!!!!!!!!!!!!!!!!
Had bloods done last week all seemed ok - back for clinic appt n bloods again 2moro so will see wot they say!!
P xxxxxxxxxxxxxxxx
Been home nearly a week now - cant believe it!! feeling ok if very very tired - 2nd lot of chemo kickin in now :-( and trying to stay germ free!!!!!!!!!!!!!!!!!!
Had bloods done last week all seemed ok - back for clinic appt n bloods again 2moro so will see wot they say!!
P xxxxxxxxxxxxxxxx
Tuesday, 3 November 2009
I'm Coming home I've done my time!!
Got the news - count went up to 3.6 overnight!!!!!!!!!!!!!!! so that's me outta here this afternoon.
Still gotta be squeaky clean careful but yeahhhhhhhhhhhhh home!! - really surprised it has happened all so quickly and almost incident free so far.
Baldy P gets her 'freedom' pass lol
lotsa love to all .................... from almost on the outside lol xxxxxxxxxxxxxxx
Still gotta be squeaky clean careful but yeahhhhhhhhhhhhh home!! - really surprised it has happened all so quickly and almost incident free so far.
Baldy P gets her 'freedom' pass lol
lotsa love to all .................... from almost on the outside lol xxxxxxxxxxxxxxx
Monday, 2 November 2009
The only way is up .................... Baby!!
Docs not long been round - My little 0.1 count of yesterday has increased to a whopping 0.4!! and the news on the street is .......................... If tomorrow my count is 0.5 or over I not only get to leave my little prison cell I get to go home .........................2moro!!!!!!!!!!!!!!!!!
How about that for some good Monday morning news - was almost too excited to enjoy my massage lol
Still gotta take it easy for a good few weeks/months gonna have to be careful as open to infections n stuff - so still have to go to the hospital for clinic appts and the day unit - to keep a check on me and my bloods.
So anyway GROW you little f******s GROW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Love to ya all
P xxxxxxxxxxxxxxxxxxxx
How about that for some good Monday morning news - was almost too excited to enjoy my massage lol
Still gotta take it easy for a good few weeks/months gonna have to be careful as open to infections n stuff - so still have to go to the hospital for clinic appts and the day unit - to keep a check on me and my bloods.
So anyway GROW you little f******s GROW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Love to ya all
P xxxxxxxxxxxxxxxxxxxx
Sunday, 1 November 2009
I want to break free!!
lol that could be a song you know.
Ok 8 days in the room now getting a bit bored (not forgetting the clocks went back last weekend so that did add another hour - officially!!)
It's the just just not knowing when I will be allowed out - don't get me wrong I don't be going off out to the cinema or shopping or anything - but just a teeny weeny bit of fresh air would be lovelyyyyyyyyyyyyyyyyyyyyyyy
Just saw one of the doctors - maybe in a few days i.e. when count goes up to 0.5 I can leave the room i.e. walk on the ward!.
Well that kinda all i can say really as not alot happening at all,
Luv Ya all
Thanks for the comments/messages :-) xxxxxxxxxxxxxxxxx
Ok 8 days in the room now getting a bit bored (not forgetting the clocks went back last weekend so that did add another hour - officially!!)
It's the just just not knowing when I will be allowed out - don't get me wrong I don't be going off out to the cinema or shopping or anything - but just a teeny weeny bit of fresh air would be lovelyyyyyyyyyyyyyyyyyyyyyyy
Just saw one of the doctors - maybe in a few days i.e. when count goes up to 0.5 I can leave the room i.e. walk on the ward!.
Well that kinda all i can say really as not alot happening at all,
Luv Ya all
Thanks for the comments/messages :-) xxxxxxxxxxxxxxxxx
Friday, 30 October 2009
Who is a clever girl then .....................
Yep that would be me!!
Managed to get my neutrophiles up to a whopping 0.1 lololol all by myself without the GCSF! SO THERE!!
Thats cool - Im impressed, also had a visit from Vinnie (Dentist) he stuck my tooth/goldcap back on so that was cool too.
Oh but some other count or other has dropped :-( so gotta have a couple of bags of bag of blood! - Thankyou to all the wonderful blood donors out there :-)
P xxxxxxxxxxxxx Counting, counting, counting lol
(this message should have been posted yesterday but was a small Internet problem)
Managed to get my neutrophiles up to a whopping 0.1 lololol all by myself without the GCSF! SO THERE!!
Thats cool - Im impressed, also had a visit from Vinnie (Dentist) he stuck my tooth/goldcap back on so that was cool too.
Oh but some other count or other has dropped :-( so gotta have a couple of bags of bag of blood! - Thankyou to all the wonderful blood donors out there :-)
P xxxxxxxxxxxxx Counting, counting, counting lol
(this message should have been posted yesterday but was a small Internet problem)
Thursday, 29 October 2009
Hiya all,
Thanks for you messages :-)
no - not really anymore interesting facts about my room - except I am sure it is getting smaller!!
Oh and would you bloody believe it - a gold cap came loose today nearly swallowed it - well gonna try n get a dentist with a little cement to pop down n stick it back in lol.
Blood count still oh whole fat ZERO! - probably will be til Saturday when I start to have some more GCSF (injections like before to stimulate my stem cells for my harvesting, grown hormone factor stuff) - well not alot to tell ya cos I cant escape - but if I run to the door when they take the bins out I can see outside lol - yeah I know I gotta window ................ but its a 'different' bit of outside!!
luv to all
P xxxxxx
Thanks for you messages :-)
no - not really anymore interesting facts about my room - except I am sure it is getting smaller!!
Oh and would you bloody believe it - a gold cap came loose today nearly swallowed it - well gonna try n get a dentist with a little cement to pop down n stick it back in lol.
Blood count still oh whole fat ZERO! - probably will be til Saturday when I start to have some more GCSF (injections like before to stimulate my stem cells for my harvesting, grown hormone factor stuff) - well not alot to tell ya cos I cant escape - but if I run to the door when they take the bins out I can see outside lol - yeah I know I gotta window ................ but its a 'different' bit of outside!!
luv to all
P xxxxxx
Tuesday, 27 October 2009
Feel like a prisoner with haircut to match lol
Hi All
Still locked in my little room - count hit zero, yesterday and today (but that's the idea) so cant go anywhere - getting a little cabin feverish but ho-hum and very tired - keep doing the whole nodding dog thing - will break my neck a this rate lol.
Had half hour reflexology yesterday which was very pleasant :-)
Well not alot else I can tell you except that .............................................................................................. my room is 17 1/3 piggy steps by 14 1/2 piggy steps!!
LOLOLOL
Pxxxxxxxxxxxxxxx
Still locked in my little room - count hit zero, yesterday and today (but that's the idea) so cant go anywhere - getting a little cabin feverish but ho-hum and very tired - keep doing the whole nodding dog thing - will break my neck a this rate lol.
Had half hour reflexology yesterday which was very pleasant :-)
Well not alot else I can tell you except that .............................................................................................. my room is 17 1/3 piggy steps by 14 1/2 piggy steps!!
LOLOLOL
Pxxxxxxxxxxxxxxx
Sunday, 25 October 2009
The Chemo is doing it's job .....................
Well the chemo is doing it's job - (sorry Jill, have to put in the nasty bits too) bloods are dropping as off yesterday morning I am officially Neutropenic - very low blood counts - i.e. the chemo is working - killing off all the old cells - then the stem cells will eventually grow, grow, grow replace the old immune system, yeah thats about it really lol.
So I am locked in my room - I am allowed visitors - HEALTHY ONES ONLY!! - not feeling too bad yesterday/today so far - but gotta hit the bottom before you can climb the ladder back up again.
It is kinda odd not being allowed out feel like a prisoner lol.
luv to all
P xxxxxxxxxxxx
So I am locked in my room - I am allowed visitors - HEALTHY ONES ONLY!! - not feeling too bad yesterday/today so far - but gotta hit the bottom before you can climb the ladder back up again.
It is kinda odd not being allowed out feel like a prisoner lol.
luv to all
P xxxxxxxxxxxx
Saturday, 24 October 2009
Week One – Short breakdown: HONEST IT IS ....... JUST LOOKS LOTS!!
Sorry peeps probably more for my benefit than yours
To help with the boredom – as feeling ok at the moment
Summat too look back on in the future
also if the entry is that boring it might help me sleep lol or you :-)
DAY 1 – SATURDAY 17TH OCTOBER 2009 - Chemo
DAY 2 – SUNDAY 18TH OCTOBER 2009 - Chemo
DAY 3 – MONDAY 19TH OCTOBER 2009 - ATG DAY – the rabbit stuff, no initial reaction, that followed.
More chemo – yeah I know repetitive aint it lol
Day 4 – TUESDAY 20TH OCTOBER 2009 - ATG – RABBIT DAY 2, had a slight reaction, temperature, feeling unwell for a good few hours but soon passed.
Carol popped up to see me briefly as poorly and Michael came to visiting in the evening so all in all turned into a good day.
DAY 5 WEDNESDAY 21ST OCTOBER 2009 - Met Lisa outside visiting hours downstairs had a wicked hour or so having coffee n McD’s for lunch (well it is in the same road so considered ‘on site’ well is in my eyes).
DAY 6 – THURSDAY 22ND OCOBER 2009 - Lots of lots of peeing thanx to the meds, as managed to gain almost a stone and a half due to fluid retention (fat cow)!
DAY 7 – FRIDAY 23RD OCTOBER 2009 (NOW DAY ZERO – LOL)
STEM CELL REPLACEMENT DAY – MY NEW BIRTHDAY
All went well and continues to do so.
I did manage to get a couple of hours (literally 2!) free in the morning so I was really bad!
I jumped in a cab outside popped home n had a HUGEEEEEEEEE squeeze of my boys – quick coffee with Carol n Shelia and popped to Tesco and came back to the hospital for my Stem cell replacement (given via IV drip)in the afternoon.
I think I could have got away with it but I could not resist the urge to purchase some Krispy Kreme donuts for the ward and the day unit – I think that was when they began to enquire as to where have you been?? lol – but hey – I think I got away with it lol.
So now we just sit back and wait – feeling ok but any day from today to next weekend all my blood counts will start to drop I shall be very unwell and get neutropenic (i.e. no immune system and in isolation and very open to infection anf just generally feeling like sh**e!)
Then it is just a case of getting over that waiting for the bloods to slowly rise and start to climb the ladder back up.
Its not gonna be easy I doubt but hey I am in wonderful hands I have you all out there routing for me – and HEY I GOT 2 BIRTHDAYS Now! …………… NUFF SAID LOL
Lovin ya all
P xxxxxxxxxx
Sorry peeps probably more for my benefit than yours
To help with the boredom – as feeling ok at the moment
Summat too look back on in the future
also if the entry is that boring it might help me sleep lol or you :-)
DAY 1 – SATURDAY 17TH OCTOBER 2009 - Chemo
DAY 2 – SUNDAY 18TH OCTOBER 2009 - Chemo
DAY 3 – MONDAY 19TH OCTOBER 2009 - ATG DAY – the rabbit stuff, no initial reaction, that followed.
More chemo – yeah I know repetitive aint it lol
Day 4 – TUESDAY 20TH OCTOBER 2009 - ATG – RABBIT DAY 2, had a slight reaction, temperature, feeling unwell for a good few hours but soon passed.
Carol popped up to see me briefly as poorly and Michael came to visiting in the evening so all in all turned into a good day.
DAY 5 WEDNESDAY 21ST OCTOBER 2009 - Met Lisa outside visiting hours downstairs had a wicked hour or so having coffee n McD’s for lunch (well it is in the same road so considered ‘on site’ well is in my eyes).
DAY 6 – THURSDAY 22ND OCOBER 2009 - Lots of lots of peeing thanx to the meds, as managed to gain almost a stone and a half due to fluid retention (fat cow)!
DAY 7 – FRIDAY 23RD OCTOBER 2009 (NOW DAY ZERO – LOL)
STEM CELL REPLACEMENT DAY – MY NEW BIRTHDAY
All went well and continues to do so.
I did manage to get a couple of hours (literally 2!) free in the morning so I was really bad!
I jumped in a cab outside popped home n had a HUGEEEEEEEEE squeeze of my boys – quick coffee with Carol n Shelia and popped to Tesco and came back to the hospital for my Stem cell replacement (given via IV drip)in the afternoon.
I think I could have got away with it but I could not resist the urge to purchase some Krispy Kreme donuts for the ward and the day unit – I think that was when they began to enquire as to where have you been?? lol – but hey – I think I got away with it lol.
So now we just sit back and wait – feeling ok but any day from today to next weekend all my blood counts will start to drop I shall be very unwell and get neutropenic (i.e. no immune system and in isolation and very open to infection anf just generally feeling like sh**e!)
Then it is just a case of getting over that waiting for the bloods to slowly rise and start to climb the ladder back up.
Its not gonna be easy I doubt but hey I am in wonderful hands I have you all out there routing for me – and HEY I GOT 2 BIRTHDAYS Now! …………… NUFF SAID LOL
Lovin ya all
P xxxxxxxxxx
Friday, 23 October 2009
ALSO HAPPY BIRTHDAY TO ME!!!!!!
Well apprently I am allowed to have this as my my new real official 2nd birthday of the year - Rachael said (the lovely dietician) so if there is an issue over this regarding gifts and cards next year please feel free to take the matter up with her!! lol ;-)
Well yep I HAVE BEEN TRANSPLANTED - no Ill effects - well maybe the cuppa the student made - appart from that IT'S ALL GOOD!!!!!!!!!!!!!!
And here to share with you all are some photos - lol yeah I know, Im sad but hey!!
THE DELIVERY VEHICLE LOL!
NOW THATS WOT I CALL SMOKIN BABY - AS THE CELLS EMERGE!!!!!
COOL OR WOT!!
THIS IS WHERE THE CELLS ARE WARMED TO BODY TEMP - POSH MICROWAVE REALLY LOL
YEP THIS IS WOT ALL THE FUSS IS ABOUT - STEM CELLS MINE ALL MINE!!
Well thats was my day PMSL - did you do anything good/interesting/different lol ??????????
Lovin ya all
Pxxxxxxxxxxxxxxxxxx
Today is THE DAY!! - TRANSPLANT DAY :-)
Well its finally here transplant day - which in medical hospital terms now becomes DAY 0 (zero)and 2moro day 0+1 and so on.
So you will have to excuse me if I use those terms from now on but this hospital jargon is kinda catching.
Also gotta say a Hugeeeeeeeee HAPPY TO YOU DAY to big, big bro Steve - cant wait to get well n outta here and come and see you and Jane and Maddie - and we can have day fishing - will be cool :-), have a good day and enjoy your dinner out 2nite - love to all.
More congrats in order too - my favourite niece - Sarah Bsc Hons (Who graduated from Loughborough earlier this year in Criminology) has a Job!!!!!!!!!!!! - yeahhhhhhhh well done you Sarzzzzzzzzzzzzzzzzzzzzzzzzzzzz, she will be working 3 days a week in a school with able bodied and physically handicapped children (I am sure she will be a very helpful member of the class lol!!) and she is also doing a 2 day a week course at Bucks Uni - gaining a psycological accreditation to her degree - She surely gets her brains from ............. yep must be her mothers side lol - so a fab fab day all round. Oh and her dad - that would be Bruv No 4 - is so excited too - he has this really odd idea she is now gonna pay rent PMSL!!!!! - I hope I spelt all this correctly and got it right - please sarz feel free to chastise me!!
Well I did try n post this up a around 6 am and had a technical error - or sleep deprivation - so here goes again!!
Lovin ya all - more to follow!!!!!!
P xxxxxxxxx
So you will have to excuse me if I use those terms from now on but this hospital jargon is kinda catching.
Also gotta say a Hugeeeeeeeee HAPPY TO YOU DAY to big, big bro Steve - cant wait to get well n outta here and come and see you and Jane and Maddie - and we can have day fishing - will be cool :-), have a good day and enjoy your dinner out 2nite - love to all.
More congrats in order too - my favourite niece - Sarah Bsc Hons (Who graduated from Loughborough earlier this year in Criminology) has a Job!!!!!!!!!!!! - yeahhhhhhhh well done you Sarzzzzzzzzzzzzzzzzzzzzzzzzzzzz, she will be working 3 days a week in a school with able bodied and physically handicapped children (I am sure she will be a very helpful member of the class lol!!) and she is also doing a 2 day a week course at Bucks Uni - gaining a psycological accreditation to her degree - She surely gets her brains from ............. yep must be her mothers side lol - so a fab fab day all round. Oh and her dad - that would be Bruv No 4 - is so excited too - he has this really odd idea she is now gonna pay rent PMSL!!!!! - I hope I spelt all this correctly and got it right - please sarz feel free to chastise me!!
Well I did try n post this up a around 6 am and had a technical error - or sleep deprivation - so here goes again!!
Lovin ya all - more to follow!!!!!!
P xxxxxxxxx
Wednesday, 21 October 2009
Well wot can I say .............
Thank you all so much for your comments - especially you Jill n Bruv No2 - have just screamed with laughter think the nurse thought I was having another reaction to the ATG.
Yes had a bit of a reaction yesterday so didn't feel very well, surprisingly none of the symptoms Jill describe PMSL.
Feeling a much brighter little 'bunny' today ........ ummmmmm can ya get bald bunnies??
Had a bit of a shock this morning - saw a man outside my window ................ I'M ON THE 8TH FLOOR!!!! think he is ok and not a stalker - will let ya know lol
The staff here are fab - well they have to be for putting up with me!
And Carol for feeding and generally amusing the boys whilst I am in here and the other million and one things she does, sometime she does things in my house and it takes me weeks to notice lol - I would be absolutely lost without her - I hope Stuart or Julie - passes on or reads this message to her cos she is a *************star ************
Doctors just been round happy with me so thats good - still have a weight gain issue with all the fluids they are pumping into me but may not get a many fluids today and a more or that nice little injection to make me pee loadsssssssssssss!!!!! so that should drop a few kilo's (2.25 pounds to a Kilo ok :-) its all metric here lol.
Singing off for now Baldy Bunny P xxxxxxxxxxxxx
Yes had a bit of a reaction yesterday so didn't feel very well, surprisingly none of the symptoms Jill describe PMSL.
Feeling a much brighter little 'bunny' today ........ ummmmmm can ya get bald bunnies??
Had a bit of a shock this morning - saw a man outside my window ................ I'M ON THE 8TH FLOOR!!!! think he is ok and not a stalker - will let ya know lol
The staff here are fab - well they have to be for putting up with me!
And Carol for feeding and generally amusing the boys whilst I am in here and the other million and one things she does, sometime she does things in my house and it takes me weeks to notice lol - I would be absolutely lost without her - I hope Stuart or Julie - passes on or reads this message to her cos she is a *************star ************
Doctors just been round happy with me so thats good - still have a weight gain issue with all the fluids they are pumping into me but may not get a many fluids today and a more or that nice little injection to make me pee loadsssssssssssss!!!!! so that should drop a few kilo's (2.25 pounds to a Kilo ok :-) its all metric here lol.
Singing off for now Baldy Bunny P xxxxxxxxxxxxx
Monday, 19 October 2009
Ummmm Rabbit for dinner............ PMSL!!!
Hi all
No - not really having rabbit for dinner - The ATG (a type of chemo stuff I'm having later) comes in 2 forms one contains horse and one contains rabbit.
Oh by the way just to clarify I ain't gotta eat it, its a rabbit by-product and I get it via a drip into my line, just in case someone thought otherwise lol - I'm having rabbit, not mt choice just the one im being given, I think I ordered sausages for my actually dinner - so don't think I will get confused!
Im am feeling ok just the normal crohn's stuff - no ill affects as yet from the chemo - but they are on the way, maybe by the weekend? who knows lol but I will be the first and I shall share my joy with you all lololol
Will try n update later after my rabbit n sausages n if no ill affects from the ATG!!
luv to all
Baldy P (but still with eyebrows - but not for long!!) xxxxx
and a hugeeeeeeee GOOD LUCK to Andy for 2moro!! xxxxxxxxxxxxxxxxxxxx
No - not really having rabbit for dinner - The ATG (a type of chemo stuff I'm having later) comes in 2 forms one contains horse and one contains rabbit.
Oh by the way just to clarify I ain't gotta eat it, its a rabbit by-product and I get it via a drip into my line, just in case someone thought otherwise lol - I'm having rabbit, not mt choice just the one im being given, I think I ordered sausages for my actually dinner - so don't think I will get confused!
Im am feeling ok just the normal crohn's stuff - no ill affects as yet from the chemo - but they are on the way, maybe by the weekend? who knows lol but I will be the first and I shall share my joy with you all lololol
Will try n update later after my rabbit n sausages n if no ill affects from the ATG!!
luv to all
Baldy P (but still with eyebrows - but not for long!!) xxxxx
and a hugeeeeeeee GOOD LUCK to Andy for 2moro!! xxxxxxxxxxxxxxxxxxxx
Saturday, 17 October 2009
Chemo'd Again
Hi - yeahhhhhhhhhhhhhhhh finally made it in for my transplant :-)
Having Chemo - saturday and sunday
Summat called ATG - Mon, Tues, Wed
Get my little stem cells back on Thurs
Then just sit back n wait to get sick ............... get sick then get better :-)
Well thats the plan - will keep ya all updated
P xxxxxxxx
Having Chemo - saturday and sunday
Summat called ATG - Mon, Tues, Wed
Get my little stem cells back on Thurs
Then just sit back n wait to get sick ............... get sick then get better :-)
Well thats the plan - will keep ya all updated
P xxxxxxxx
Friday, 9 October 2009
New revised admission date (for the 4th time lol)
Well, bearing any disasters, natural, acts of god or deliberate my new admission date is the 17th of October! Yup just a week on Saturday!
So that's a mere 8 days to stay healthy (as I can) and keep everything crossed - oh yeah especially them ........ lol might be sterile now but don't wanna catch owt nasty ............. anyway boys don't wanna sleep with bald girls lolololol pmsl
Off to a 40th Party 2moro night - may have one or 2 scotch n cokes may need to stay away from the shots though!
Well that's about it I think .................. as I am merrily formatting my desktop - yep gonna take forever to install everything again but ho hum will keep me outta trouble ..... for a while and beats the shit outta ironing all day long lol
Lotsa luv to all
Bald n keeping ALL her bits crossed P xxxxxxxxxxxxx
So that's a mere 8 days to stay healthy (as I can) and keep everything crossed - oh yeah especially them ........ lol might be sterile now but don't wanna catch owt nasty ............. anyway boys don't wanna sleep with bald girls lolololol pmsl
Off to a 40th Party 2moro night - may have one or 2 scotch n cokes may need to stay away from the shots though!
Well that's about it I think .................. as I am merrily formatting my desktop - yep gonna take forever to install everything again but ho hum will keep me outta trouble ..... for a while and beats the shit outta ironing all day long lol
Lotsa luv to all
Bald n keeping ALL her bits crossed P xxxxxxxxxxxxx
Thursday, 1 October 2009
Waiting Waiting Waiting!
Well not alot to report - except I have a dry socket lol my tooth cavity, so got some stuff n hopefully eventually it will heal and I can be transplanted - also picked up a bit of a sniffle - so definately not going in this weekend - maybe the next one (10th.)
But I have not been idle with Bruv No 2's help decorated the little hallway at the weekend and it does look rather nice - considering it was all bargin basement paint n paper from b&q - wallpaper £5 each (reduced from about £15-£20) and 2.5 litres of Dulux satin Wood paint for a pound!! reduced from about £30!! wey hey - happy days! also picked up 5 litres of silk emulision for £2 so may do the lounge next ............................. next year that is lol
Well should anything exciting or dramatic happen I shall let ya know.
Baldy P xxxxxxxxxxxx
But I have not been idle with Bruv No 2's help decorated the little hallway at the weekend and it does look rather nice - considering it was all bargin basement paint n paper from b&q - wallpaper £5 each (reduced from about £15-£20) and 2.5 litres of Dulux satin Wood paint for a pound!! reduced from about £30!! wey hey - happy days! also picked up 5 litres of silk emulision for £2 so may do the lounge next ............................. next year that is lol
Well should anything exciting or dramatic happen I shall let ya know.
Baldy P xxxxxxxxxxxx
Friday, 25 September 2009
The transplant due from platform ........
Is delayed!!!!
Had my tooth out - but the infection is still there so my transplant has been delayed as they don't wanna run the risk of it flaring up whilst Im having chemo - fair enough it is an unnecessary risk so maybe next week or the week after.
I had my Hickman line fitted on Wednesday and must thank the lovely Claire for arranging sedation cos that would have bloody hurt without it!!!!!!!!!!!
Anyway feel a little like Frankenstein's monster with a tube in my neck and coming outtta my chest with 3 little cannula type things hanging off it lol - SO ATTRACTIVEEEEEEEEEEE!!
Only the bolt thru my neck is missing!
So I ran round like a looney for most of the week getting stuff sorted - and now I get a least another week to trash the house and start again lol.
Let ya know summat interesting when I do lol unless you got summat interesting to share with me?????????????
Baldy P xxxxxx :-)
Had my tooth out - but the infection is still there so my transplant has been delayed as they don't wanna run the risk of it flaring up whilst Im having chemo - fair enough it is an unnecessary risk so maybe next week or the week after.
I had my Hickman line fitted on Wednesday and must thank the lovely Claire for arranging sedation cos that would have bloody hurt without it!!!!!!!!!!!
Anyway feel a little like Frankenstein's monster with a tube in my neck and coming outtta my chest with 3 little cannula type things hanging off it lol - SO ATTRACTIVEEEEEEEEEEE!!
Only the bolt thru my neck is missing!
So I ran round like a looney for most of the week getting stuff sorted - and now I get a least another week to trash the house and start again lol.
Let ya know summat interesting when I do lol unless you got summat interesting to share with me?????????????
Baldy P xxxxxx :-)
Thursday, 17 September 2009
Dental Issue ............ Grrrrrrr
My bloody abscess came back over the weekend and my dentist is not keen to touch it due to chemo - its never easy is it!
Got more anti-biotics - spent 4 hours at the hospital emergency dentist yesterday - oh wot joy! and gotta go back today to have the tooth removed this morning and more IV anti-biotics.
Also have an appt with Claire (transplant nurse) gotta drop off a 24 urine sample - wow I get to do some great stuff!! and Rachael (dietician) this afternoon - ummmmmm hair loss and tooth removal well that wont do the weight issue any good will it, better wear some heavy clothes lol.
I have had one or two strange looks wandering round with my bandanna's on - people who know me but not too well don't know about the treatment I have opted to go through have looked and kinda smiled oddly - almost sympathetically, haven't noticed anyone purposely avoiding me yet - thinking the worse and that I have cancer, its kinda a strange situation but I am sure it will happen, I suppose its an obvious assumption but still kinda strange.
My friends on the other hand have been great - shouts of 'Oi Tuffy' and 'oooh that reminds me I haven't had a boiled egg for ages' and various other things - they are all digging out their kids fuzzy felts to make me some eyebrows for when they fall out lol oh and just to clarify so far the ONLY place my hair has not started to fall out is my ............................... ARMS!
I know you are all dying to ask lol - but hey got another week of some serious chemo to come so suppose it will all go then.
Love to all
A still chilly Baldy P xxxx
Got more anti-biotics - spent 4 hours at the hospital emergency dentist yesterday - oh wot joy! and gotta go back today to have the tooth removed this morning and more IV anti-biotics.
Also have an appt with Claire (transplant nurse) gotta drop off a 24 urine sample - wow I get to do some great stuff!! and Rachael (dietician) this afternoon - ummmmmm hair loss and tooth removal well that wont do the weight issue any good will it, better wear some heavy clothes lol.
I have had one or two strange looks wandering round with my bandanna's on - people who know me but not too well don't know about the treatment I have opted to go through have looked and kinda smiled oddly - almost sympathetically, haven't noticed anyone purposely avoiding me yet - thinking the worse and that I have cancer, its kinda a strange situation but I am sure it will happen, I suppose its an obvious assumption but still kinda strange.
My friends on the other hand have been great - shouts of 'Oi Tuffy' and 'oooh that reminds me I haven't had a boiled egg for ages' and various other things - they are all digging out their kids fuzzy felts to make me some eyebrows for when they fall out lol oh and just to clarify so far the ONLY place my hair has not started to fall out is my ............................... ARMS!
I know you are all dying to ask lol - but hey got another week of some serious chemo to come so suppose it will all go then.
Love to all
A still chilly Baldy P xxxx
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