Who is a clever girl then .....................

Yep that would be me!!


Managed to get my neutrophiles up to a whopping 0.1 lololol all by myself without the GCSF! SO THERE!!

Thats cool - Im impressed, also had a visit from Vinnie (Dentist) he stuck my tooth/goldcap back on so that was cool too.


Oh but some other count or other has dropped :-( so gotta have a couple of bags of bag of blood! - Thankyou to all the wonderful blood donors out there :-)

P xxxxxxxxxxxxx Counting, counting, counting lol

(this message should have been posted yesterday but was a small Internet problem)

Hiya all,
Thanks for you messages :-)
no - not really anymore interesting facts about my room - except I am sure it is getting smaller!!

Oh and would you bloody believe it - a gold cap came loose today nearly swallowed it - well gonna try n get a dentist with a little cement to pop down n stick it back in lol.

Blood count still oh whole fat ZERO! - probably will be til Saturday when I start to have some more GCSF (injections like before to stimulate my stem cells for my harvesting, grown hormone factor stuff) - well not alot to tell ya cos I cant escape - but if I run to the door when they take the bins out I can see outside lol - yeah I know I gotta window ................ but its a 'different' bit of outside!!

luv to all
P xxxxxx

Feel like a prisoner with haircut to match lol

Hi All
Still locked in my little room - count hit zero, yesterday and today (but that's the idea) so cant go anywhere - getting a little cabin feverish but ho-hum and very tired - keep doing the whole nodding dog thing - will break my neck a this rate lol.

Had half hour reflexology yesterday which was very pleasant :-)

Well not alot else I can tell you except that .............................................................................................. my room is 17 1/3 piggy steps by 14 1/2 piggy steps!!

LOLOLOL
Pxxxxxxxxxxxxxxx

The Chemo is doing it's job .....................

Well the chemo is doing it's job - (sorry Jill, have to put in the nasty bits too) bloods are dropping as off yesterday morning I am officially Neutropenic - very low blood counts - i.e. the chemo is working - killing off all the old cells - then the stem cells will eventually grow, grow, grow replace the old immune system, yeah thats about it really lol.

So I am locked in my room - I am allowed visitors - HEALTHY ONES ONLY!! - not feeling too bad yesterday/today so far - but gotta hit the bottom before you can climb the ladder back up again.

It is kinda odd not being allowed out feel like a prisoner lol.

luv to all
P xxxxxxxxxxxx

Week One – Short breakdown: HONEST IT IS ....... JUST LOOKS LOTS!!

Sorry peeps probably more for my benefit than yours
To help with the boredom – as feeling ok at the moment
Summat too look back on in the future
also if the entry is that boring it might help me sleep lol or you :-)

DAY 1 – SATURDAY 17TH OCTOBER 2009 - Chemo

DAY 2 – SUNDAY 18TH OCTOBER 2009 - Chemo

DAY 3 – MONDAY 19TH OCTOBER 2009 - ATG DAY – the rabbit stuff, no initial reaction, that followed.
More chemo – yeah I know repetitive aint it lol

Day 4 – TUESDAY 20TH OCTOBER 2009 - ATG – RABBIT DAY 2, had a slight reaction, temperature, feeling unwell for a good few hours but soon passed.
Carol popped up to see me briefly as poorly and Michael came to visiting in the evening so all in all turned into a good day.

DAY 5 WEDNESDAY 21ST OCTOBER 2009 - Met Lisa outside visiting hours downstairs had a wicked hour or so having coffee n McD’s for lunch (well it is in the same road so considered ‘on site’ well is in my eyes).

DAY 6 – THURSDAY 22ND OCOBER 2009 - Lots of lots of peeing thanx to the meds, as managed to gain almost a stone and a half due to fluid retention (fat cow)!

DAY 7 – FRIDAY 23RD OCTOBER 2009 (NOW DAY ZERO – LOL)
STEM CELL REPLACEMENT DAY – MY NEW BIRTHDAY
All went well and continues to do so.
I did manage to get a couple of hours (literally 2!) free in the morning so I was really bad!
I jumped in a cab outside popped home n had a HUGEEEEEEEEE squeeze of my boys – quick coffee with Carol n Shelia and popped to Tesco and came back to the hospital for my Stem cell replacement (given via IV drip)in the afternoon.
I think I could have got away with it but I could not resist the urge to purchase some Krispy Kreme donuts for the ward and the day unit – I think that was when they began to enquire as to where have you been?? lol – but hey – I think I got away with it lol.

So now we just sit back and wait – feeling ok but any day from today to next weekend all my blood counts will start to drop I shall be very unwell and get neutropenic (i.e. no immune system and in isolation and very open to infection anf just generally feeling like sh**e!)
Then it is just a case of getting over that waiting for the bloods to slowly rise and start to climb the ladder back up.
Its not gonna be easy I doubt but hey I am in wonderful hands I have you all out there routing for me – and HEY I GOT 2 BIRTHDAYS Now! …………… NUFF SAID LOL

Lovin ya all
P xxxxxxxxxx

ALSO HAPPY BIRTHDAY TO ME!!!!!!

Well apprently I am allowed to have this as my my new real official 2nd birthday of the year - Rachael said (the lovely dietician) so if there is an issue over this regarding gifts and cards next year please feel free to take the matter up with her!! lol ;-)

Well yep I HAVE BEEN TRANSPLANTED - no Ill effects - well maybe the cuppa the student made - appart from that IT'S ALL GOOD!!!!!!!!!!!!!!

And here to share with you all are some photos - lol yeah I know, Im sad but hey!!

THE DELIVERY VEHICLE LOL!

NOW THATS WOT I CALL SMOKIN BABY - AS THE CELLS EMERGE!!!!!

COOL OR WOT!!

THIS IS WHERE THE CELLS ARE WARMED TO BODY TEMP - POSH MICROWAVE REALLY LOL

YEP THIS IS WOT ALL THE FUSS IS ABOUT - STEM CELLS MINE ALL MINE!!

Well thats was my day PMSL - did you do anything good/interesting/different lol ??????????

Lovin ya all

Pxxxxxxxxxxxxxxxxxx

Today is THE DAY!! - TRANSPLANT DAY :-)

Well its finally here transplant day - which in medical hospital terms now becomes DAY 0 (zero)and 2moro day 0+1 and so on.

So you will have to excuse me if I use those terms from now on but this hospital jargon is kinda catching.


Also gotta say a Hugeeeeeeeee HAPPY TO YOU DAY to big, big bro Steve - cant wait to get well n outta here and come and see you and Jane and Maddie - and we can have day fishing - will be cool :-), have a good day and enjoy your dinner out 2nite - love to all.


More congrats in order too - my favourite niece - Sarah Bsc Hons (Who graduated from Loughborough earlier this year in Criminology) has a Job!!!!!!!!!!!! - yeahhhhhhhh well done you Sarzzzzzzzzzzzzzzzzzzzzzzzzzzzz, she will be working 3 days a week in a school with able bodied and physically handicapped children (I am sure she will be a very helpful member of the class lol!!) and she is also doing a 2 day a week course at Bucks Uni - gaining a psycological accreditation to her degree - She surely gets her brains from ............. yep must be her mothers side lol - so a fab fab day all round. Oh and her dad - that would be Bruv No 4 - is so excited too - he has this really odd idea she is now gonna pay rent PMSL!!!!! - I hope I spelt all this correctly and got it right - please sarz feel free to chastise me!!

Well I did try n post this up a around 6 am and had a technical error - or sleep deprivation - so here goes again!!

Lovin ya all - more to follow!!!!!!
P xxxxxxxxx

Well wot can I say .............

Thank you all so much for your comments - especially you Jill n Bruv No2 - have just screamed with laughter think the nurse thought I was having another reaction to the ATG.

Yes had a bit of a reaction yesterday so didn't feel very well, surprisingly none of the symptoms Jill describe PMSL.

Feeling a much brighter little 'bunny' today ........ ummmmmm can ya get bald bunnies??

Had a bit of a shock this morning - saw a man outside my window ................ I'M ON THE 8TH FLOOR!!!! think he is ok and not a stalker - will let ya know lol

The staff here are fab - well they have to be for putting up with me!
And Carol for feeding and generally amusing the boys whilst I am in here and the other million and one things she does, sometime she does things in my house and it takes me weeks to notice lol - I would be absolutely lost without her - I hope Stuart or Julie - passes on or reads this message to her cos she is a *************star ************

Doctors just been round happy with me so thats good - still have a weight gain issue with all the fluids they are pumping into me but may not get a many fluids today and a more or that nice little injection to make me pee loadsssssssssssss!!!!! so that should drop a few kilo's (2.25 pounds to a Kilo ok :-) its all metric here lol.

Singing off for now Baldy Bunny P xxxxxxxxxxxxx

Ummmm Rabbit for dinner............ PMSL!!!

Hi all

No - not really having rabbit for dinner - The ATG (a type of chemo stuff I'm having later) comes in 2 forms one contains horse and one contains rabbit.
Oh by the way just to clarify I ain't gotta eat it, its a rabbit by-product and I get it via a drip into my line, just in case someone thought otherwise lol - I'm having rabbit, not mt choice just the one im being given, I think I ordered sausages for my actually dinner - so don't think I will get confused!

Im am feeling ok just the normal crohn's stuff - no ill affects as yet from the chemo - but they are on the way, maybe by the weekend? who knows lol but I will be the first and I shall share my joy with you all lololol

Will try n update later after my rabbit n sausages n if no ill affects from the ATG!!
luv to all
Baldy P (but still with eyebrows - but not for long!!) xxxxx

and a hugeeeeeeee GOOD LUCK to Andy for 2moro!! xxxxxxxxxxxxxxxxxxxx

Chemo'd Again

Hi - yeahhhhhhhhhhhhhhhh finally made it in for my transplant :-)
Having Chemo - saturday and sunday
Summat called ATG - Mon, Tues, Wed
Get my little stem cells back on Thurs
Then just sit back n wait to get sick ............... get sick then get better :-)

Well thats the plan - will keep ya all updated

P xxxxxxxx

New revised admission date (for the 4th time lol)

Well, bearing any disasters, natural, acts of god or deliberate my new admission date is the 17th of October! Yup just a week on Saturday!
So that's a mere 8 days to stay healthy (as I can) and keep everything crossed - oh yeah especially them ........ lol might be sterile now but don't wanna catch owt nasty ............. anyway boys don't wanna sleep with bald girls lolololol pmsl

Off to a 40th Party 2moro night - may have one or 2 scotch n cokes may need to stay away from the shots though!

Well that's about it I think .................. as I am merrily formatting my desktop - yep gonna take forever to install everything again but ho hum will keep me outta trouble ..... for a while and beats the shit outta ironing all day long lol

Lotsa luv to all
Bald n keeping ALL her bits crossed P xxxxxxxxxxxxx

Waiting Waiting Waiting!

Well not alot to report - except I have a dry socket lol my tooth cavity, so got some stuff n hopefully eventually it will heal and I can be transplanted - also picked up a bit of a sniffle - so definately not going in this weekend - maybe the next one (10th.)

But I have not been idle with Bruv No 2's help decorated the little hallway at the weekend and it does look rather nice - considering it was all bargin basement paint n paper from b&q - wallpaper £5 each (reduced from about £15-£20) and 2.5 litres of Dulux satin Wood paint for a pound!! reduced from about £30!! wey hey - happy days! also picked up 5 litres of silk emulision for £2 so may do the lounge next ............................. next year that is lol

Well should anything exciting or dramatic happen I shall let ya know.

Baldy P xxxxxxxxxxxx